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December 13, 2023 | by Jeri Gore, Editor-in-Chief of the IAES Blog; Sung by Barbara Layt Vujaklija 

Happy Holidays from the entire staff at IAES!

To all our members all over the world and in whatever manner you celebrate we send our love, we wish you happiness and good health in the coming year!

We hope you enjoy this song and video as much as I do! When I first heard it, I laughed so hard my stomach hurt. The Twelve Days of Christmas has always been a favorite Christmas song of mine and to hear Barbara’s AE spoof on the original is brilliant and fun! IAES first released this back in 2015 when IAES was in its infancy.  Barb, our very first volunteer, and Tabitha Orth, our founder and president, wrote the lyrics.  Barb sang. How she did it without laughing is beyond me, but I am glad she did because we can all enjoy her merry take on a fun song for years and years.

I thought it appropriate to publish this video/song at this time in honor of the season as well as the person singing. Barbara is retiring from her post at IAES after years and countless hours spent volunteering on behalf of every single one of us. We have all been touched by Barb or the programs she helped to start. As stated above, she was the very first volunteer even before IAES became an official nonprofit organization. All new members have been greeted by the folks she helped train through the membership committee which she began. She and her team have guided over six thousand inquiries for new membership and helped direct them to the people and programs that best benefit each individual. Barb started the IAES blog and The Herdnewsletter. Both publications are unprecedented in the AE community. As a trained nurse and AE Warrior, herself, Barb has helped countless members and their families throughout every aspect of their AE diagnoses and journey. Barb’s knowledge, sense of humor, ability to remain calm in a crisis, and positive/can-do attitude have helped IAES become the organization it is today and will be in the future.

When I took over the IAES blog three years ago and became editor-in-chief I had mighty big shoes to fill. I was nervous! Barb was patient, helped guide me in an area in which I had no experience and always made me feel as though it would all be ok. To say I admire, and respect Barb is a complete understatement. It is because of Barb and folks like her that many of us with AE and our caregivers have had the help and guidance we have needed, and AE has gotten to the point of awareness it is today.  I, for one, will be forever grateful.

We hope you enjoy this song/video and giggle as much as I did! Barb, thank you for all you have done and for giving us your time, patience, and your singing voice

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International Autoimmune Encephalitis Society (IAES), home of the AEWarrior®, is the only Family/Patient-centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. Your donations are greatly appreciated and are the direct result of IAES’ ability to develop the first product in the world to address the needs of patients, Autoimmune Encephalitis Trivia Playing Cards. Every dollar raised allows us to raise awareness and personally help Patients, Families, and Caregivers through their Journey with AE to ensure that the best outcomes can be reached. Your contribution to our mission will help save lives and improve the quality of life for those impacted by AE. 

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Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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