Home of the AE Warrior®
Empowering victims of Autoimmune Encephalitis and caregivers through support and education.
The International Autoimmune Encephalitis Society is a Family/Patient centered organization that assists patients from getting a diagnosis to recovery and the many challenges experienced throughout that journey.
Doctor's Information
As more antibodies in autoimmune encephalitis have been identified and with the increased knowledge about this group of diseases, Mayo Clinic has updated their antibody panel evaluations (Aug-31-2021).
Rehabilitation
Autoimmune Encephalitis Warriors, (patients) often require rehabilitation due to an acquired brain injury (ABI). The neurologist will refer the AE patient for a neuropsychological evaluation to see what areas of the brain are not functioning properly.
Living with AE
Deficits the patient experiences in cognitive domains show a slow and incomplete recovery and may slowly improve even years following the end of treatment. It is not uncommon for a patient to need several months of convalescence with intensive rehabilitation.
The IAES Facebook educational support group is for patients who have a confirmed diagnosis of antibody-mediated Autoimmune Encephalitis, Paraneoplastic AE, Antibody negative AE/seronegative or ADEM and their loved ones.
The only support group in the AE community to answer questions based on what research reports, provide advocacy, one-on-one educational support, resources for all aspects of your AE journey, guidance and emotional support with administrators in recovery who hold medical or specialized professional experience that addresses your needs.
AE Trivia Playing Cards