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February 13, 2019 | Jean Fowler


In Recognition of World Encephalitis Day, February 22nd, IAES will be publishing additional Blogs throughout February in its effort to increase raised awareness of Autoimmune Encephalitis.  Today’s story is in Memoriam of Lizzy McDaniel.  The following text will be published in the next magazine of the Poetry Project in NYC. It will include one of her poems, under this tribute, as well as her photo.

Lizzy McDaniel, exceptionally gifted poet, scholar, and French translator, passed away on June 19, 2018 at the age of 35, after a battle with antibody-negative autoimmune encephalitis, a rare form of the disease. Lizzy was an extraordinary human being whose grace, wit, and original poetic practice changed all those who came into contact with her.

Lizzy was born at the Bethesda Naval Hospital, Maryland and grew up in South Carolina. She lived for many years in New York City, where she received her Bachelor’s degree and MFA in creative writing from The New School.  In addition to being a brilliant poet, Lizzy was a singer of opera. Her knowledge of philosophy, art, and music was endlessly rich. With great sensitivity and care, she gathered history’s secrets, often weaving them into her poems. Her unique poetic voice moves with agility between the fiery and the delicate, boldness and nuance. In her poems, interiority opens onto the world, and so transforms.

Lizzy’s chapbooks include Partial View (Green Zone Editions, 2009) and Angel Applicant (2014). Her poems appeared in the literary magazines MAGGY, Gerry Mulligan, and Sal Mimeo, as well as in the anthology Like Musical Instruments: 83 Contemporary American Poets, edited by Larry Fagin and featuring photography by John Sarsgard (Broadstone Books, 2014). For a period of time, Lizzy lived in Paris where she worked on a project under the title Between the Two Tongues, which she pursued through Columbia University. The project, focused on Mallarmé, deployed an innovative approach to poetic translation, in which she turned untranslatability into a fertile ground for creating “fresh couplings of sound and sense” in multiple expressions. This open-ended creative practice, inspired by a Mallarméan poetics of potentiality and seeking to participate in the writing of collaborative text, voix mixte, built on the notes toward the poet’s unfinished Hérodiade. Parts of this project are collected in Angel Applicant.

In the last years of her life, Lizzy battled an illness on which much medical research remains to be done. She passed away at her family’s home in Sunset Beach, North Carolina. Lizzy is survived by her sister Kate McDaniel, her mother Jean Fowler, and her stepfather Tom Fowler. Many dear friends survive her as well. We honor her and remember her with love.


This moon is useless  

I must have another

planets chime in their pockets

I’ve missed them for how many weeks?

gas waits to be flame

the ocean may sit on my lap

with plenty left over

if I discover a new species

it will not be grateful

like a human thing

gasping on the lawn

but I’ve hatched a plot

to outsmart the squid

to read by its bioluminescence

Dostoevsky, Giordano Bruno and Poems of A. O. Barnabooth

Lizzy McDaniel is featured toward the end of our World Encephalitis Day 2019 video,

 You Are the Reason.   Share this video, as each view could save a life.  Our goal is to reach 2,000 views by February 22nd, WED 2019.

72f61a 9d7df361d29c4bfea2c67c7ad32f221c mv2 - A Life Well Lived, A Life Cut Short ~ In Memoriam

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World Encephalitis Day.

 Donate to Support IAES and our Life Saving Mission

72f61a 3eaae30e022a4006a3b5e928b4bb8d75~mv2 - A Life Well Lived, A Life Cut Short ~ In Memoriam

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International Autoimmune Encephalitis Society (IAES) is a Family/Patient centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. 

Driven by the knowledge that “Education is Power”, International Autoimmune Encephalitis Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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