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About Us

The International Autoimmune Encephalitis Society is the only Family/Patient centered organization for people with a diagnosis of Autoimmune Encephalitis. The services we provide are all inclusive from getting a diagnosis to recovery and the many challenges experienced in that journey. 

Our Motto

“Empowering victims of Autoimmune Encephalitis and their caregivers through Support and Education”.

Raising awareness of Autoimmune Encephalitis across the many specialties of medicine that come in contact with these disorders and raising awareness with the general public to ensure a timely and accurate diagnosis and aggressive treatment plan for best outcomes.

We recognized the need to help people understand the disease of Autoimmune encephalitis so they can partner with their treating physician in getting proper care. We believe that understanding through education is the most valuable tool an individual with this disease or caretaker can possess. Education is power and leads to strong self-advocacy which in turn leads to better care and outcomes.

Our Mission Statement

The International Autoimmune Encephalitis Society, (IAES), assists patients, family members and caregivers in all areas of their journey.

Raising awareness of Autoimmune Encephalitis across the many specialties of medicine that come in contact with these disorders and raising awareness with the general public to ensure a timely and accurate diagnosis and aggressive treatment plan for best outcomes.

Services provided include assisting with insurance issues or getting insurance coverage, assisting with over turning insurance denials for life saving treatment, (for members in the U.S.A.), crisis advocacy, directing patients to experts for confirmation of an accurate diagnosis. We connect families with free air travel and discounted stays near several major medical centers.   

Additionally, IAES helps families and patients understand the disease and the treatments involved so they can become strong advocates/self-advocates and have more productive doctor appointments. Receiving an accurate diagnosis and appropriate treatment for best outcomes is the key component.

Our Founders

Anji Fesler

Co-Founder
Houston, Texas

Gene Desotell

Co-Founder
Fredericksburg, Virginia

Tabitha Orth

Co-Founder
Beaverton, Oregon

Board of Directors

The Board of Directors is a group of committed volunteers. No board member receives compensation.

Tabitha Orth
President
Beaverton, OR

Gene Desotell
Vice President
Fredericksburg, Virginia

Dr. Daria Muir
Secretary
Aberdeenshire, UK.

Oksana Sweeney
Treasurer
Vineland, New Jersey

Barbara Layt Vujaklija
Member at Large/Liason
Conway, South Carolina

Committed Volunteers

Brian W. Donnelly
Legal Counsel
Mount Laurel, NJ

 

 

Medical Advisory Board

Dr. Daria Muir
Working Medical Consultant
Aberdeenshire, UK.

Dr. Alexander Rae-Grant
Neuroimmunologist
Cleveland Clinic, Ohio

Dr. Michael Geschwind
Behavioral Cognitive Neurologist
USCF AE Clinic

Dr. James Morrow
Retired Neurologist, UK
VGKC Limbic Encephalitis
patient in recovery

Dr. Michael E. Newmark
Neurologist
Houston, Texas

Dr. Alfonso S. Lopez Chiriboga
Neurologist
Mayo Clinic

Jacksonville, FL

Dr. Michael Sweeney
Neurologist
Louisville, KY

Dr. Tom Pollak
Clinical Lecturer in General Psychiatry
Denmark Hill, UK

Dr. Veronica Cipriani
Assistant Professor of Neurology
University of Chicago

Medical Consultants with Expertise

Dr. Anna Moise

Neurology, Psychiatry
Asheville, NC

The medical information on the International Autoimmune Encephalitis Society, Inc.  website is provided as informational and educational resources only and in no way should be taken to be the provision or practice of medical, nursing or professional health care advice or services.  The information should not be considered complete or exhaustive and should not be used in place of a visit, call, consultation or advice of your physician or another healthcare provider.  All content, including text, graphics, images, videos, podcasts, slideshows, any information, contained on or available through this website, is for general information purposes only.  The information on this website is not to be used, implied, or relied upon as a substitute for professional medical advice, diagnosis or treatment for Autoimmune encephalitis or any medical disorder.

​You are encouraged to confirm any information obtained from or through this web site with other sources, and review all information regarding any medical condition or treatment with your physician.  NEVER DISREGARD PROFESSIONAL MEDICAL ADVICE OR DELAY SEEKING MEDICAL TREATMENT BECAUSE OF SOMETHING YOU HAVE READ ON OR ACCESSED THROUGH THIS WEB SITE.

                                                                                              Any referral to physicians is provided as a courtesy only

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization. Tax ID# 81-3752344 Donations raised directly supports patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

CONTACT US


352-527-2470

IAES@AUTOIMMUNE-ENCEPHALITIS.ORG

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