Through increased awareness and education, IAES has successfully changed the face of the AE community with our gold standard model. IAES established the month of February as AE Awareness Month in 2000, when increased awareness is celebrated and medical experts join us for our acclaimed Speaker Series.  Our services begin with assistance in receiving an accurate diagnosis by an expert in autoimmune neurology who can successful orchestrate a complex treatment regimen throughout the course of the patient’s illness. IAES connects patients to doctors and doctors to doctors to confer on cases for the best outcome possible. We remove travel and accommodation financial burdens by connecting patients with free flights/discounted accommodations to medical experts on our Doctor’s list located near major medical facilities in the U.S.A. and parts of Australia.

Autoimmune Encephalitis Warriors, a term we have given to patients, caregivers and families, appropriately describes the burden of fighting the disease and the road blocks encountered on that journey. Additionally, IAES leads the community by conducting the only science-based educational support group for patients, caregivers and families and holds  monthly zoom meetings for patients focusing on resilience as well as a monthly zoom meeting specifically designed for caregivers.    Because AE is a complex topic, IAES has designed ‘AE Memes‘, a teaching tool that utilizes best practice strategies for learning by supporting the AE patient’s cognitive deficits while utilizing their strengths allowing for easy learning.  Understanding  this group of diseases, its treatments, what to expect on your AE journey, and rehabilitiation needs, those impacted feel more empowered in their ability to advocate, experience improved communication with their doctors and a sense of added control and improved confidence. 

Additionally, direction for case management, one on one advocacy in navigating crisis situations, financial advice to prevent bankruptcy, hospital overbilling, overturning treatment denials by insurance, psychiatric hold prevention, advice for Social Security Disability, and rehabilitation are provided.  

We offer a free patient resource guide, The First Aid Tool Kit, that provides the guidance required to navigate through your AE journey with ease by avoiding crisis situations patients are vulnerable of encountering. Free tools such as our AE medical I.D. card, AE Behavior/Symptoms card, Well-Being Warrior Journal and the development of the only educational product for AE created, AE Trivia playing cards have all been designed to safeguard you from unnecessary crisis thus ensuring your safety and success. Lastly, IAES manages the most comprehensive website on autoimmune encephalitis which doctors and patients rely on worldwide. We operate the only ‘Hot Line’ in the AE community which was established in 2016.