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AE Awareness Speakers 2022

AE  Awareness Month

Speakers Series Announced

In Celebration of Autoimmune Encephalitis Month, February 2023, we are pleased to be providing the AE community with a speaker series that will take place via live webinars throughout the month.

Presentations that will be recorded and featured on the IAES YouTube channel.

Bruce Cree, MD, PhD, MAS

Bruce Cree, MD, PhD, MAS

Professor, Neurology UCSF Weill Institute for Neurosciences

Topic: Treatments in Autoimmune Encephalitis 

Date: February 2nd-2023  4 PM EST

Register for this Webinar

Dr. Cree will be giving an overview of autoimmune encephalitis with a focus on treatments. Dr. Cree completed his MD and PhD in Biochemistry at UCSF. His neurology residency training was at Columbia University. He returned to UCSF for a Sylvia Lawry National Multiple Sclerosis Society fellowship and received a Masters in Advanced Studies in Clinical Research. He is the Clinical Research Director at the UCSF MS Center. He divides his time between patient care, clinical research and teaching.

Marianna Spatola, MD, PhD

Marianna Spatola, MD, PhD

Neurologist

Topic:  Autoimmune Encephalitis

Date: February 7th-2023 12 PM EST | 6 PM CET

Register for this Webinar

Dr. Spatola has been a Research fellow in basic and clinical neuroimmunology at IDIBAPS (August
Pi i Sunyer Biomedical Research Institute), Neuroimmunology laboratory (Head
Prof. J Dalmau), and University Clinical Hospital (Head Prof. F Graus), Barcelona,
Spain, since March 2015.

Eoin Flanagan, M.B., B.Ch.

Eoin Flanagan, M.B., B.Ch.

Neuroimmunology/Neurology Mayo Clinic

Topic: Autoimmune Encephalitis Misdiagnosis in Adults

Date: February 13th, 5 PM EST

 

Register for this Webinar 

A broad range of disorders are misdiagnosed as autoimmune encephalitis and misdiagnosis occurs in many settings including at specialized centers.  Dr. Flanagan will review his et al recently published work, a case series of 107 outpatients misdiagnosed with autoimmune encephalitis. Identified red flags suggesting alternative diagnoses included an insidious onset, positive nonspecific serum antibody, and failure to fulfill autoimmune encephalitis diagnostic criteria. Autoimmune encephalitis misdiagnosis leads to morbidity from unnecessary immunotherapies and delayed treatment of the correct diagnosis. 

Dr. Eoin Flanagan is an Associate Professor of Neurology and Consultant in the departments of Neurology and Laboratory Medicine and Pathology at the Mayo Clinic (Rochester, MN). His clinical expertise and research are focused on the diagnosis and management of autoimmune neurological disorders with an emphasis on inflammatory autoimmune spinal cord disorders and their mimics including their MRI patterns. He also has an interest in the epidemiology of inflammatory demyelinating diseases of the central nervous system and autoimmune neurologic disorders.

 

Jonathan D. Santoro, MD

Jonathan D. Santoro, MD

Medical Director, Neuroimmunology and Demyelinating Disorders Program Attending Physician, Division of Neurology, Children's Hospital LA, Calif ., Assistant Professor of Neurology, Keck School of Medicine of USC

Topic: Pediatric Autoimmune Encephalitis

Date: February 21st 2023 7 PM EST

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Dr. Santoro serves as the Director of Neuroimmunology and Demyelinating Disorders Program at Children’s Hospital Los Angeles. He is also an assistant professor of neurology at the Keck School of Medicine at the University of Southern California. Santoro completed his undergraduate, masters, and medical degrees at Tulane University. He subsequently completed residencies in pediatrics and child neurology at Stanford University School of Medicine and subsequently had sub-specialty training in neuroimmunology and pediatric multiple sclerosis at Harvard Medical School. Santoro is a passionate clinician-scientist who has published over 50 peer-reviewed manuscripts. Santoro is one of only a handful of national clinician-scientists who treats neurologic disorders associated with Down syndrome.

Clinical Interests: Acute Disseminated Encephalomyelitis (ADEM), Pediatric Multiple Sclerosis, Neuromyelitis Optica Spectrum Disorders, MOG Antibody Syndrome, Anti-NMDA Receptor Encephalitis, Optic Neuritis, Transverse Myelitis, Neurologic Disorders Associated With Down Syndrome, Bickerstaff’s Brainstem Encephalitis and GQ1b Antibody Mediated Disorders, Autoimmune Encephalitis, Hashimoto’s Encephalitis,Down Syndrome Regression Disorder

He currently serves on the American Academy of Neurology’s Health Policy Sub-committee and as the representative of the AAN to the American Medical Association. Santoro is a long-standing advocate for persons with disabilities and has lobbied locally in California and on Capitol Hill.

Grace Tworek, Psy.D.

Grace Tworek, Psy.D.

Clinical Health Psychologist, Cleveland Clinic

Topic: The Role of Behavioral Medicine in Autoimmune Encephalitis Care: Supportive services for the patient, caregiver, and family members over the long-term

Date: February 23rd, 2023 3 PM EST

 Register for Webinar

Dr. Tworek is a clinical health psychologist at the Cleveland Clinic in Cleveland, OH. She completed her graduate training at Nova Southeastern University in South Florida, where she developed a passion for health psychology and providing psychology services to those managing medical diagnoses. She completed her fellowship within the Mellen Center for Multiple Sclerosis at the Cleveland Clinic. It was through working with the dedicated team of neurologists at CCF that she developed a passion for the unique needs and opportunities to provide support and therapeutic services to those diagnosed with autoimmune encephalitis. Through the support of the Mellen center, she is working toward expanding behavioral medicine services to the AE patient population to include inpatient hospitalizations, outpatient follow up, and caregiver support.

 

Claude Steriade, MD,CM

Claude Steriade, MD,CM

Neurologist, NYU Langone Hospitals

Topic: Autoimmune Epilepsy

Date: February 24th 2023 1 PM EST

Register for Webinar

Dr. Claude Steriade is a neurologist in New York, NY, and is affiliated with NYU Langone Hospitals. Dr. Steriade has a specialty in Epilepsy and has had an interest in Autoimmune Epilepsy since her residency. She has fast become considered a top expert in that arena by her peers. She graduated from Geneva General Hospital/Marion Whelan School of Nursing in 2011. She received her medical degree from McGill University Faculty of Medicine and has been in practice for 6 years. (with 11 years of experience in the medical field).

Virtual Art Show 2023

Virtual Art Show 2023

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Fun Advocacy Activities You Can Get Involved with During AE Awareness Month 2023

Fun Advocacy Activities You Can Get Involved with During AE Awareness Month 2023

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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IAES@AUTOIMMUNE-ENCEPHALITIS.ORG

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