UA-85741662-2

Blog

ae wARRIOR pERSONAL sTORIES

 AND TOPICS OF INTEREST

 

Through my eyes: Watching my Dad’s AE journey

Through my eyes: Watching my Dad’s AE journey

November-13-2019 | Ryan J Dinero It’s been a little over two years since I got the phone call from my Mom. I was a sophomore in college and was entirely unprepared for the conversation that was to follow. She explained that my dad had a minor seizure while at work and...

read more
When the judge has read the book…

When the judge has read the book…

May 22, 2019 | Julie Ann Fetch Finally, some good news to share with everyone. I just got a favorable ruling from Social Security Disability that I meet their criteria due to my having anti-NMDAr Encephalitis and other autoimmune conditions.I initially applied in 2015...

read more
Mother’s Day Tribute

Mother’s Day Tribute

May 12, 2019 | Mari Davis, Barbara Layt Vujaklija and Elaine Contarino-Cannella IAES would like to wish all Mothers a very happy Mother's Day! You are dearly loved.  Meet three very special Moms counted among you.  Grace My mother’s name is Grace. It fits her...

read more
Learning Supports for Children and Young People with AE

Learning Supports for Children and Young People with AE

May 8, 2019  |  Alison Westerkamm and Missy Simpson After a diagnosis of Autoimmune Encephalitis many children and young people will need specialized learning supports to enable them to succeed at school. This blog post explains what Alison Westerkamm discovered when...

read more
A Diagnosis for Daisy

A Diagnosis for Daisy

A Diagnosis for Daisy April 24, 2019  ,,Shadazah Brown (known as Daisy) I used to get these weird feelings of anxiety. While I was working, talking, shopping, driving (of course I’d pull over) but then it started happening too often. I started having mood changes so...

read more
Even Doctors Can Learn

Even Doctors Can Learn

March 27, 2019 |  Juliet Jimenez   I found a local endocrinologist at the request of my neuroimmunologist, Dr. Vernino at UT Southwestern. (The FP holistic nurse practitioner I was seeing seemed to be confused about my medications, and they weren't working at all. My...

read more
Now I am a Strong Woman

Now I am a Strong Woman

March 13, 2019 | Hannah Leasure Hannah Leasure's Mother attempts to give her medication On Christmas Eve 2013, I was admitted to hospital, where I stayed until April 2014. I had the RARE autoimmune disease called anti-NMDA receptor encephalitis. It took the doctors...

read more
I’ll never have a ‘normal’ Life

I’ll never have a ‘normal’ Life

February 23, 2019 |  Maddy Boehme Great Expectations: Maddy’s Story 10:43 minutes  On my 19th birthday, I had an appointment with my doctor. I was a freshman in college, taking three classes a semester. That was all I could handle.  Every waking day was spent in the...

read more
The Invisible Disease

The Invisible Disease

February 22, 2019  | Lisa Lauter  World Encephalitis Day - Lisa Lauter Tells Her Story  13 minute video  I was diagnosed with LGI1 Autoimmune Encephalitis (AE) in February 2018. Encephalitis is a devastating brain disease that affects about 500,000 people worldwide. ...

read more
A Life Well Lived, A Life Cut Short ~ In Memoriam

A Life Well Lived, A Life Cut Short ~ In Memoriam

February 13, 2019 | Jean Fowler   In Recognition of World Encephalitis Day, February 22nd, IAES will be publishing additional Blogs throughout February in its effort to increase raised awareness of Autoimmune Encephalitis.  Today’s story is in Memoriam of Lizzy...

read more
I Have My Wings Back

I Have My Wings Back

February 9, 2019 | Claudia Lozano I was diagnosed with Transverse Myelitis back in 2013. I am doing a lot better with that and had been doing great up until early 2018. I was working as a Supervisor in a company that restores and maintains carpet and other flooring,...

read more
Light at the End of the Tunnel

Light at the End of the Tunnel

January 30, 2019 | Kerry Jones   Hi, my name is Kerry Jones and I’ve been diagnosed with LGI-1 autoimmune encephalitis by the Mayo Clinic in Rochester MN. I was seen by the Mayo Clinic only after trying to get appointments with local doctors, to discover that I...

read more
The Scariest Time of my Life -Battling Limbic Encephalitis

The Scariest Time of my Life -Battling Limbic Encephalitis

January 21, 2019 | Chris Ory   I’ve always been a socially active happy person. Loved to travel. Have gotten to experience a life that most people haven’t gotten to experience. I have had the same job for the last 5 years, I manage a small retail shop. Have a nephew...

read more
Life Goes On!

Life Goes On!

January 3, 2019 | Megzo   I went on sick leave for fatigue in October 2015. When I left work, I left a battle field behind me. Ten weeks later encephalitis entered my life. One minute, I was in my kitchen, the next I found myself waking up in a hospital bed. What...

read more
My letter to Santa ATTENTION: YULETIDE BUREAU  WISH DEPARTMENT

My letter to Santa ATTENTION: YULETIDE BUREAU WISH DEPARTMENT

  December 19, 2018 | Tabitha Andrews Orth  My letter to Santa. ATTENTION: YULETIDE BUREAU  WISH DEPARTMENT Dear Santa, As you know, I have given great thought to my Christmas wish this year.  I hope I have made your 'NICE LIST", as my wish is in the form of a favor....

read more
The Loneliness of Invisibility

The Loneliness of Invisibility

October 17, 2018 | Diane Davis Back in my day, diseases were visible.  Of course, we only knew about maybe 20 or 30 of them personally, and were totally oblivious to everything else. Chicken pox at 3 years old – you could see them, scratch them and pull off the scabs...

read more
Through My Struggle came Tremendous Strength. Never Give Up!

Through My Struggle came Tremendous Strength. Never Give Up!

December 5, 2018 | Colleen O’Neal   Six years ago, I couldn’t turn on the faucet I distinctly remember standing in front of the sink, wanting a drink of water and not being able to turn on the faucet. I could certainly reach it, and the faucet was functional, but I...

read more
Lee’s Valiant Journey Recovering From Autoimmune Encephalitis

Lee’s Valiant Journey Recovering From Autoimmune Encephalitis

November 28, 2018 | Lynne Ogburn  Lee Gatewood at Duke Health and Fitness Center working on Cardio for brain health. My daughter, Lee Gatewood, was hospitalized with 'something' March 11-2018.  It wasn't until we were three weeks into this ‘something’ that we received...

read more
Meet the IAES Admins ~ Series Introducing Jo-Anne Villar

Meet the IAES Admins ~ Series Introducing Jo-Anne Villar

November 6, 2018 | Jo-Anne Villar   Jo-Anne Villar with her daughter Jordan Each month the IAES Blog is featuring one of our volunteer Administrators working in the IAES Educational Facebook Support Group.  The educational support forum is specifically designed...

read more
Why I Am So Thankful this Thanksgiving ~Sydni’s Story

Why I Am So Thankful this Thanksgiving ~Sydni’s Story

  November 14, 2018 | Jamie Dobson I was asked to share my daughter’s story.  I’m not much of a writer, but I thought that I would give it a try.  Sydni is a 16 year old who dreams of being a paramedic.  She has always been the one that is willing to help and has such...

read more
Never Give Up! Just Keep Going

Never Give Up! Just Keep Going

  October 31, 2018 | Kim Kennedy-Raley, RN Hi everyone, my name is Kim Raley and I was diagnosed with Hashimoto’s Encephalitis in July of 2018 although my symptoms were present for years before diagnosis. I am 53 years old, I love the Lord, I’m a parent to 3 children...

read more
Should I Get the Flu Shot if I have Autoimmune Encephalitis?

Should I Get the Flu Shot if I have Autoimmune Encephalitis?

October 5, 2018 | Barbara Vujaklija, RN 'Tis the season.  No, put away the holiday cards and gift wrap, I’m talking about Flu season.  IAES has received a few inquiries recently about whether or not Autoimmune Encephalitis patients should or can get the flu shot. So, ...

read more
The Turbulent History of an anti-NMDAr Encephalitis Warrior

The Turbulent History of an anti-NMDAr Encephalitis Warrior

August 22, 2018 | Sarah Galloway Epilog: From: My Broken Reflections by Sarah Galloway August 2018 "The very in recovery. The swell to well. I am elated to be back to my normalish ways and wanted to celebrate with you all. Even after the darkest time, the weight has...

read more
Meet the IAES Admins ~ Series

Meet the IAES Admins ~ Series

  August 16, 2018 | Tabitha Andrews Orth  Tabitha Orth, Co-Founder and IAES Secretary Board of Directors Each month the IAES Blog will be featuring one of our volunteer Administrators working in the IAES Educational Facebook Support Group.  The educational support...

read more

Archives

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization. Tax ID# 81-3752344 Donations raised directly supports patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

CONTACT US


352-527-2470

IAES@AUTOIMMUNE-ENCEPHALITIS.ORG

Website Security Test
Translate »