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IAES Turns 3. Meet Our New Board of Directors

IAES Turns 3. Meet Our New Board of Directors

September 5th, 2019 The IAES Board of Directors is a group of committed volunteers. No board member receives compensation. Therefore, we are especially grateful to have the expertise and talents of these dedicated professionals. Our annual election results bring us...

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A Tribute to Father’s on Father’s Day

A Tribute to Father’s on Father’s Day

June-16-2019 | Michelle Wilson, Mari Davis Wagner and Lisa Hiller Mothers may be the most vocal front line when it comes for advocating with a child who has a chronic illness like autoimmune encephalitis (AE), but Fathers are often the rock.  Our daughter Whitney has...

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I Thought I had the Flu, by Evening I was in Coma

I Thought I had the Flu, by Evening I was in Coma

By: Elizabeth Lowther | June 12, 2019 I started having issues when I was 35. I started having trouble learning a new computer system at work (as an RN). I have never had trouble learning new skills-apps on computers.  I also was having issues with tremors in my arms...

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My AE Journey Began on A Beautiful Summer’s Day

By: Lisa Lauter | May 29, 2019 https://www.youtube.com/watch?v=iUJQCRKLILQ    Suddenly, I saw flashing lights in the sky. It was a beautiful summer’s day on July 5, 2017.  The temperature was perfect and there was not a cloud in the sky. My adorable young nephews,...

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When the judge has read the book…

When the judge has read the book…

May 22, 2019 | Julie Ann Fetch Finally, some good news to share with everyone. I just got a favorable ruling from Social Security Disability that I meet their criteria due to my having anti-NMDAr Encephalitis and other autoimmune conditions.I initially applied in 2015...

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Mother’s Day Tribute

Mother’s Day Tribute

May 12, 2019 | Mari Davis, Barbara Layt Vujaklija and Elaine Contarino-Cannella IAES would like to wish all Mothers a very happy Mother's Day! You are dearly loved.  Meet three very special Moms counted among you.  Grace My mother’s name is Grace. It fits her...

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Learning Supports for Children and Young People with AE

Learning Supports for Children and Young People with AE

May 8, 2019  |  Alison Westerkamm and Missy Simpson After a diagnosis of Autoimmune Encephalitis many children and young people will need specialized learning supports to enable them to succeed at school. This blog post explains what Alison Westerkamm discovered when...

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A Diagnosis for Daisy

A Diagnosis for Daisy

A Diagnosis for Daisy April 24, 2019  ,,Shadazah Brown (known as Daisy) I used to get these weird feelings of anxiety. While I was working, talking, shopping, driving (of course I’d pull over) but then it started happening too often. I started having mood changes so...

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Even Doctors Can Learn

Even Doctors Can Learn

March 27, 2019 |  Juliet Jimenez   I found a local endocrinologist at the request of my neuroimmunologist, Dr. Vernino at UT Southwestern. (The FP holistic nurse practitioner I was seeing seemed to be confused about my medications, and they weren't working at all. My...

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Now I am a Strong Woman

Now I am a Strong Woman

March 13, 2019 | Hannah Leasure Hannah Leasure's Mother attempts to give her medication On Christmas Eve 2013, I was admitted to hospital, where I stayed until April 2014. I had the RARE autoimmune disease called anti-NMDA receptor encephalitis. It took the doctors...

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I’ll never have a ‘normal’ Life

I’ll never have a ‘normal’ Life

February 23, 2019 |  Maddy Boehme Great Expectations: Maddy’s Story 10:43 minutes  On my 19th birthday, I had an appointment with my doctor. I was a freshman in college, taking three classes a semester. That was all I could handle.  Every waking day was spent in the...

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The Invisible Disease

The Invisible Disease

February 22, 2019  | Lisa Lauter  World Encephalitis Day - Lisa Lauter Tells Her Story  13 minute video  I was diagnosed with LGI1 Autoimmune Encephalitis (AE) in February 2018. Encephalitis is a devastating brain disease that affects about 500,000 people worldwide. ...

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A Life Well Lived, A Life Cut Short ~ In Memoriam

A Life Well Lived, A Life Cut Short ~ In Memoriam

February 13, 2019 | Jean Fowler   In Recognition of World Encephalitis Day, February 22nd, IAES will be publishing additional Blogs throughout February in its effort to increase raised awareness of Autoimmune Encephalitis.  Today’s story is in Memoriam of Lizzy...

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I Have My Wings Back

I Have My Wings Back

February 9, 2019 | Claudia Lozano I was diagnosed with Transverse Myelitis back in 2013. I am doing a lot better with that and had been doing great up until early 2018. I was working as a Supervisor in a company that restores and maintains carpet and other flooring,...

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Light at the End of the Tunnel

Light at the End of the Tunnel

January 30, 2019 | Kerry Jones   Hi, my name is Kerry Jones and I’ve been diagnosed with LGI-1 autoimmune encephalitis by the Mayo Clinic in Rochester MN. I was seen by the Mayo Clinic only after trying to get appointments with local doctors, to discover that I...

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The Scariest Time of my Life -Battling Limbic Encephalitis

The Scariest Time of my Life -Battling Limbic Encephalitis

January 21, 2019 | Chris Ory   I’ve always been a socially active happy person. Loved to travel. Have gotten to experience a life that most people haven’t gotten to experience. I have had the same job for the last 5 years, I manage a small retail shop. Have a nephew...

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Life Goes On!

Life Goes On!

January 3, 2019 | Megzo   I went on sick leave for fatigue in October 2015. When I left work, I left a battle field behind me. Ten weeks later encephalitis entered my life. One minute, I was in my kitchen, the next I found myself waking up in a hospital bed. What...

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My letter to Santa ATTENTION: YULETIDE BUREAU  WISH DEPARTMENT

My letter to Santa ATTENTION: YULETIDE BUREAU WISH DEPARTMENT

  December 19, 2018 | Tabitha Andrews Orth  My letter to Santa. ATTENTION: YULETIDE BUREAU  WISH DEPARTMENT Dear Santa, As you know, I have given great thought to my Christmas wish this year.  I hope I have made your 'NICE LIST", as my wish is in the form of a favor....

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The Loneliness of Invisibility

The Loneliness of Invisibility

October 17, 2018 | Diane Davis Back in my day, diseases were visible.  Of course, we only knew about maybe 20 or 30 of them personally, and were totally oblivious to everything else. Chicken pox at 3 years old – you could see them, scratch them and pull off the scabs...

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Through My Struggle came Tremendous Strength. Never Give Up!

Through My Struggle came Tremendous Strength. Never Give Up!

December 5, 2018 | Colleen O’Neal   Six years ago, I couldn’t turn on the faucet I distinctly remember standing in front of the sink, wanting a drink of water and not being able to turn on the faucet. I could certainly reach it, and the faucet was functional, but I...

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Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization. Tax ID# 81-3752344 Donations raised directly supports patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world.

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