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June 26, 2024 | By Tabitha Orth

Message from the International Autoimmune Encephalitis Society Team:

The staff at IAES is excited to present to you a blog about building resilience in the face of autoimmune encephalitis written by our esteemed founder and president!

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Building Resilience: Overcoming Autoimmune Encephalitis

In the grand adventure of life, our bodies are like sturdy ships navigating the unpredictable seas. Yet, sometimes, these ships face unexpected storms, such as autoimmune encephalitis, a condition where the body’s immune system mistakenly attacks the brain.

But fear not, for within each of us lies a remarkable resilience – a strength to weather even the fiercest of storms. Let’s embark on a journey to understand how resilience plays a crucial role in overcoming autoimmune encephalitis.

Understanding Autoimmune Encephalitis:

Imagine the brain as a bustling city, with each neuron a busy citizen contributing to the city’s functions. Autoimmune encephalitis occurs when the immune system, our body’s defense force, mistakenly identifies these neurons as invaders and launches an attack.

This assault can lead to a cascade of symptoms, including confusion, memory loss, seizures, and even personality changes. It’s like a sudden storm wreaking havoc in the otherwise serene city of the brain.

The Power of Resilience:

Resilience is like a sturdy lighthouse guiding our ship through turbulent waters. It’s the inner strength that helps us bounce back from adversity, face challenges head-on, and emerge stronger than before.

Individuals battling autoimmune encephalitis often demonstrate incredible resilience in their journey to recovery. Despite the challenges they face – the uncertainty, the setbacks – they cling to hope and courageously navigate their way forward.

Navigating the Storm:

Recovery from autoimmune encephalitis requires a multifaceted approach, much like charting a course through treacherous waters. Medical interventions, such as immunotherapy and symptom management, serve as crucial navigational tools in calming the storm raging within the brain.

But resilience goes beyond medical treatments. It’s found in the unwavering support of loved ones, the determination to adapt to new challenges, and the willingness to embrace the journey, no matter how arduous.

Embracing the Journey:

Every journey has its ups and downs, its calm seas and stormy waters. In the face of autoimmune encephalitis, resilience is not about avoiding the storm but learning to dance in the rain.

It’s about finding moments of joy amidst the chaos, celebrating small victories along the way, and never losing sight of the beacon of hope on the horizon.

The Triumph of Resilience:

As the storm of autoimmune encephalitis begins to subside, and the clouds part to reveal glimpses of blue sky, the true triumph of resilience becomes evident. It’s in the smiles of those who have weathered the storm, in the strength forged through adversity, and in the newfound appreciation for life’s precious moments.

While autoimmune encephalitis may leave its mark, it cannot extinguish the indomitable spirit of resilience that resides within each of us. With courage, determination, and unwavering resilience, we can overcome even the most formidable of challenges and emerge stronger on the other side.

Here are five resilience exercises that can help build strength and adaptability in the face of challenges:

Positive Affirmations:

Start each day by affirming positive statements about yourself and your abilities. Repeat phrases like “I am resilient,” “I can overcome challenges,” or “I am capable of handling whatever comes my way.” Positive affirmations can help reframe negative thoughts and build confidence in your resilience.

Gratitude Journaling:

Take a few minutes each day to write down things you’re grateful for. Reflect on moments of joy, acts of kindness, or simple pleasures in your life. Cultivating a gratitude practice can shift your focus from challenges to blessings, fostering a mindset of resilience and appreciation.

Mindfulness Meditation:

Practice mindfulness meditation to cultivate present-moment awareness and calm amidst chaos. Set aside time each day to sit quietly, focus on your breath, and observe your thoughts without judgment. Mindfulness can help reduce stress, enhance self-awareness, and build emotional resilience.

Strengths Identification:

Identify your strengths and reflect on how you’ve used them to overcome challenges in the past. Whether it’s creativity, perseverance, or compassion, acknowledging your strengths can boost self-confidence and resilience. Make a list of your strengths and brainstorm ways to leverage them in current or future challenges.

Problem-Solving Skills:

Develop problem-solving skills by breaking down challenges into manageable steps and brainstorming possible solutions. Practice flexibility and adaptability by considering different perspectives and adjusting your approach as needed. Building problem-solving skills equips you with the tools to tackle obstacles with resilience and confidence.

 

Your generous Donations allow IAES to continue our important work and save lives! 

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Become an Advocate by sharing your story. It may result in accurate diagnosis for someone suffering right now who is yet to be correctly identified. Submit your story with two photos to IAES@autoimmune-encephalitis.org

 

 

International Autoimmune Encephalitis Society (IAES), home of the AEWarrior®, is the only Family/Patient-centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. Your donations are greatly appreciated and are the direct result of IAES’ ability to develop the first product in the world to address the needs of patients, Autoimmune Encephalitis Trivia Playing Cards. Every dollar raised allows us to raise awareness and personally help Patients, Families, and Caregivers through their Journey with AE to ensure that the best outcomes can be reached. Your contribution to our mission will help save lives and improve the quality of life for those impacted by AE. 

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For those interested in face masks, clothing, mugs, and other merchandise, check out our AE Warrior Store!  This online shop was born out of the desire for the AE patient to express their personal pride in fighting such a traumatic disease and the natural desire to spread awareness. Join our AE family and help us continue our mission to support patients, families and caregivers while they walk this difficult journey.  

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Be a part of the solution by supporting IAES with a donation today.

 

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Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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