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March 6, 2024 | by Tabitha Orth, IAES President and Founder

Dr. Know on Autoimmune Encephalitis

You have brains in your head, you most certainly do

100 billion neurons are there, give or take one or two.

One rainy day when the weather was shoddy,

My immune system rebelled and made a strange antibody.

As quick as a shot from my head to my toes, my thinking and feeling went haywire to ‘anything goes’.

My seeing, my walking, my talking, MY WORD,

what I heard, what I saw, what I thought was absurd!

That antibody doubled, it tri-multi-zooppled!

Making an army of friends ~ all uninvited~ who hitched rides on my neurons getting them over excited!

Zipping this way and that way around in my brain

those antibodies zapped me causing terrible pain.

My poor brain it was not feeling well. My poor brain felt insane and it started to swell!

To the Doctor I went (for my thinking was spent).

I got this test and that test and a Brain selfie too

As my Doctor, called another Doctor, who called another he knew.

They all came to see me, to try and figure out what was wrong in my head?

What was this fuss all about?

“Could it be something rare? Could it be something quite new?”

Came a voice from the doorway where all eyes suddenly flew.

It was Dr. Dalmau stopping in for a look

All the Doctors were quiet, as this man wrote the book.

“I agree when you say it is not meningitis, this patient has Autoimmune Encephalitis!

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On June 16 th, 2022, Tabitha Orth, President and Founder of International Autoimmune Encephalitis Society officially became the 7,315 th “point of light”. Recognized for the volunteer work she and IAES has done to spark change and improve the world for those touched by Autoimmune Encephalitis. The award was founded by President George H.W. Bush in 1990.

 

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Become an Advocate by sharing your story. It may result in accurate diagnosis for someone suffering right now who is yet to be correctly identified. Submit your story with two photos to IAES@autoimmune-encephalitis.org  

 

 

International Autoimmune Encephalitis Society (IAES), home of the AEWarrior®, is the only Family/Patient-centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. Your donations are greatly appreciated and are the direct result of IAES’ ability to develop the first product in the world to address the needs of patients, Autoimmune Encephalitis Trivia Playing Cards. Every dollar raised allows us to raise awareness and personally help Patients, Families, and Caregivers through their Journey with AE to ensure that the best outcomes can be reached. Your contribution to our mission will help save lives and improve the quality of life for those impacted by AE.   Trivia Playing cards 3 FB 500x419 - The Cat in the Hat on Autoimmune Encephalitis For this interested in face masks, clothing, mugs, and other merchandise, check out our AE Warrior Store!  This online shop was born out of the desire for the AE patient to express their personal pride in fighting such a traumatic disease and the natural desire to spread awareness. Join our AE family and help us continue our mission to support patients, families and caregivers while they walk this difficult journey.   AE Warrior Store 300x200 - The Cat in the Hat on Autoimmune Encephalitis

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Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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