December 29, 2021 

Introducing the IAES Vlog Series

The International Autoimmune Encephalitis Society, (IAES), is excited to announce the roll out of a new information resource, video blogs (VLOGS). This ongoing video series will be an addition to our popular IAES Blog articles.

To date, the IAES Blog has published articles that include personal stories from AE patients and their caregivers about their AE journey, informative articles regarding specific topics pertinent to AE patients and their families, and a wonderful series of articles from our partnership with PennNeuroKnow (PNK).

PNK articles are written for us by medical and PhD students and their instructors at The University of Pennsylvania. These passionate neuroscience students tackle different medical topics, (i.e., aphasia, cytokine storm, blood brain barrier, seizures in AE, etc.) and present them in layperson’s terms to assist us in becoming well informed and strong self-advocates. Each article also comes with a downloadable print out for your convenient reference and are located on this page of the IAES website: https://autoimmune-encephalitis.org/living-with-autoimmune/ 

It is our sincere hope the VLOG series will enrich your knowledge and help those with AE and those caring for AE patients. We will cover a variety of topics as well as hear AE patients and caregivers tell their stories via video interview. VLOGs will be located on the IAES YouTube channel below once published:

An AE Patient, Her Dog, and Destiny 

We hope you enjoy our inaugural video interview with Tabitha Orth, IAES President and Co-founder, as she tells us the sensitive story about her precious German shepherd, Miko, who recently lost her life to cancer. It is not a typical story or one you should miss, as it starts with Tabitha’s experience in psychosis that led her to later ask her husband, Jim, if she could get a German shepherd puppy. 

We are looking forward to being able to include many AE Warrior stories in the VLOG series. AE Warriors who are not recovered enough to write their story, but who are well enough to tell their story will raise their voices.  We also intend to bring you informative videos that will help you better understand issues you may encounter on your AE journey. Let’s raise additional awareness of Autoimmune Encephalitis in this ‘fireside chat’ venue and help empower the many thousands of AE Warriors around the world.

Enjoy the show!

Lights-Camera-Action

If you would like to sit down and tell your story to IAES via video interview, contact Jeri Gore, Editor-In-Chief, Blog Division at jeri.gore@autoimmune-encephalitis.org

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Become an Advocate by sharing your story. It may result in accurate diagnosis for someone suffering right now who is yet to be correctly identified. Submit your story with two photos to IAES@autoimmune-encephalitis.org

International Autoimmune Encephalitis Society (IAES), home of the AEWarrior®, is the only Family/Patient-centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. Your donations are greatly appreciated and are the direct result of IAES’ ability to develop the first product in the world to address the needs of patients, Autoimmune Encephalitis Trivia Playing Cards. Every dollar raised allows us to raise awareness and personally help Patients, Families, and Caregivers through their Journey with AE to ensure that the best outcomes can be reached. Your contribution to our mission will help save lives and improve the quality of life for those impacted by AE. 

For those interested in face masks, clothing, mugs, and other merchandise, check out our AE Warrior Store!  This online shop was born out of the desire for the AE patient to express their personal pride in fighting such a traumatic disease and the natural desire to spread awareness. Join our AE family and help us continue our mission to support patients, families and caregivers while they walk this difficult journey.