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Frequently Asked Questions 


Is there a cure for Autoimmune Encephalitis?




IAES’ President, Tabitha Andrews Orth, spoke with Dr. Josep Dalmau about this topic.  For those of you who are new to the AE community, Dr. Dalmau discovered the first antibody in Autoimmune Encephalitis. In 2007 he published the first paper which identified anti-NMDAr AE. Since that time, his team has identified many antibodies in this group of diseases, autoimmune encephalitides.  Their research continues. Dr. Dalmau also collaborated with IAES to develop the only product on the market for autoimmune encephalitis, AE Trivia Playing cards. Learn more here.

This is what Dr. Dalmau said.  “As you know, autoimmune encephalitides are not one but many diseases. Many patients with these diseases are cured and never have any relapses or need further treatments. As with many other diseases, some patients are cured with one type of treatment or combination of treatments, and other patients are cured with other treatments or combinations.

The fact that a disease is cured does not necessarily mean that all patients need to be treated with the same drug or “magic bullet”, it depends on the patient and the disease. These concepts apply even for cancer; there are many patients with cancer that are cured. Not all receive the same treatment. The treatment varies with the type of cancer, and even with a specific type of cancer, not all patients are treated similarly. This example applies to many different diseases.

The question can be formulated as: Are there patients with autoimmune encephalitis that are eventually cured? Answer: Yes.”

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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