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Frequently Asked Questions 


What drug manufacturers in the U.S.A. offer free treatments for AE and how can I access them?



Genentech Patient Foundation: Telephone: (888-941-3331) | Fax: (833) 999-4363

Helps people who do not have health insurance, or people who have health insurance but can’t afford their Genentech medicine. The Genentech Access to Care Foundation can help qualifying patients get their medicine for free.  Specialists are available to provide information about program guidelines and answer your questions Monday – Friday 6 AM – 5 PM PST. Medicines used in the treatment for Autoimmune Encephalitis that Genentech manufactures are:

Cellcept (mycophenolate mofetil)Rituxan (rituximab)Actemra (tocilizumab)

They can work with you if: 

  • You have no health care plan

  • Your health care plan turned down paying for your medicine

  • You have a high co-pay or co-insurance 

Gentech Financial Patient assistance support is for eligible patients in the United States who don’t have insurance coverage or who can’t afford out-of-pocket co-pay costs.


IVIG – assistance programs


Grifols USA Customer Service: 800-243-4153 and
888-325-8579, option 3
Patient Assistance for Flebogamma: 888.GRIFOLS (888-474-3657)
Gamunex Connexions Program (comprehensive support program): 888-694-2686
Grifols manufactures Flebogamma DIF and Gamunex-C.



Trokendi XR (topiramate, topamax) 

If your insurance denies coverage for this seizure medication,

download this $0 Co-pay card and pay nothing for 12 prescriptions – guaranteed. 


Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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