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IAES

Awareness Videos

ezgif 5 a42816d0f810 - IAES Awareness Videos

Sergio Muñiz-Castrillo , MD, PhD

Stanford University Scholar and specialist in autoimmune encephalitis and paraneoplastic neurological syndromes.

Prognostic Indicators for Functional & Cognitive Outcomes

Josep Dalmau, MD, PhD

IDIBAPS-Hospital Clinic, University of Barcelona, and Caixa Research Institute, Barcelona (Spain). Adjunct Professor of Neurology, University of Pennsylvania, Philadelphia, USA

Seronegative (Antibody-negative) Autoimmune Encephalitis

Mellad Khoshnood, MD

Clinical Assistant Professor of Neurology, Pediatric Neurologist USC. Children’s Hospital of Los Angeles

Pediatric Autoimmune Encephalitis

Grace Gombolay, MD

Director, Pediatric Neuroimmunology & MS Clinic Emory University School of Medicine/Children’s Healthcare of Atlanta

Treatments For Autoimmune Encephalitis

IAES’ 8th annual awareness video, We Won’t Stop Dreamingis a touchingly emotional inside look into the challenges patients with AE face.

Jeffrey Gelfand, MD, MAS, FAAN

 Assoc. Professor of Neurology, UCSF

Clinical Trials For Autoimmune Encephalitis

Ryann Henn-Hawthorne

 IAES Ambassador |AE Warrior

My Month in Hell – AE Misdiagnosed as a Psychiatric Disorder

Claude Steriade, MD, CM

 New York University School of medicine

Autoimmune Epilepsy

Grace Tworek, Psy.D.

Cleveland Clinic, Ohio

The Role of Behavioral Medicine in Autoimmune Encephalitis Care

Jonathan Santoro, MD

Assistant Professor of Neurology at CHLA and the Keck School of Medicine at USC

Pediatric Autoimmune Encephalitis

Marianna Spatola, MD, PhD

IDIBAPS (August Pi i Sunyer Biomedical Research Institute) Barcelona, Spain

Autoimmune Encephalitis

Eoin Flanagan, M.B.Ch

Mayo Clinic, Rochester, MN

Autoimmune Encephalitis

Diagnosis and Misdiagnosis

Dr. Bruce Cree, Professor, Neurology UCSF

Weill Institute for Neurosciences

Treatments in Autoimmune Encephalitis

Our 7th annual AE Awareness video is an educational and heartfelt short film featuring AE Warriors (patients) from around the globe. Gain insights into their journey. Share to raise awareness.

VLOG 102 -Editor-in-Chief, Jeri Gore, has an enlightening and helpful discussion with Daisy in this Video Blog (Vlog) about the value of having an AV fistula & how helpful it is for her in receiving plasmapheresis for Stiff-Persons-Syntrome.

VLOG 104 -Editor-in-chief, Jeri Gore has an informative discussion with Support Services Coordinator, Mari Wagner Davis, RN, ACM covering advice on how to best prepare for a doctor’s appointment.

“SEE ME”

AE Warriors join together and share how their brain injury impacts their daily life. Please share on your social media platforms.

Dr. Pojen Deng

Autoimmune Encephalitis: What Psychiatrists Need to Know

‘Daisy Ray’ (Desiree Wolter)

Reads her book: Our Fox Has Lost His Socks

Afterwards she shares the real life story of when her husband became ill with anti-NMDAr Encephalitis.

Professor Dr. Carsten Finke

Long-term Cognitive Outcomes in anti-NMDAr Encephalitis

Dr. Mastura Monif

Autoimmune Encephalitis (including sero-negative) & Treatments

Dr. Justin Abbatemarco

Autoimmune Encephalitis: A Need for Comprehensive Care

Unconditional

How A Service Dog Improves the Life of an AE Patient

Dr. Ming Lim, Pediatric Neurologist

Early Treatment For Best Outcomes in Pediatric Autoimmune Encephalitis

Pulling Through: Help for Families Navigating Life-Changing Illness

AE Warriors Stepping Forward  Raising Awareness for Autoimmune Encephalitis in celebration of our inaugural AE Awareness Month – February 2020

You Are the Reason -Raising Awareness for Autoimmune Encephalitis.

World Encephalitis Day 2019

Walk a Mile in My Shoes 2018

The Courageous Journey of Autoimmune Encephalitis Patients and their fight to reach recovery 2017

Humorous Holiday AE Awareness Videos

The Most Common Antibody of All

A humorous way to raise awareness for AE from 2018

Deck my IV Poles

A humorous way to raise awareness for AE from 2017

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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