September 5th, 2019
The IAES Board of Directors is a group of committed volunteers. No board member receives compensation. Therefore, we are especially grateful to have the expertise and talents of these dedicated professionals. Our annual election results bring us some familiar faces, who are now in new positions, and some new faces. All of whom are fully dedicated to serving the worldwide autoimmune encephalitis community and advancing our mission.
Dear AE Family,
Who would have imagined in 2016 that IAES would change the direction of the AE community? Yet that is the praise we are hearing from Doctors, patients, caregivers and families from all over the world.
As the community’s only Family/Patient centered non-profit, IAES offers services that were never available before. IAES provides guidance from when a person first becomes ill all the way through to their recovery/rehabilitation. You find a family you never knew you had with IAES. We take your hand and become your constant BFF resource no matter what challenge you find yourself faced with.
Our free pro-active guide, the ‘First Aid Tool Kit’, has become the ‘go to’ guide in the AE community.
IAES provides information that overturns treatment denials, medical over billing, educational support in understanding treatments, the disease process and what to expect. Guidance to improve relationships with your medical team, resources that affect every avenue of this journey.
Doctors around the world utilize our website to accurately diagnose and treat their patients. A team of doctors in Russia contacted us to thank us for the work we do and reported that the information they were able to access on our website saved their patients’ lives.
Our collaboration with top researchers in Autoimmune Encephalitis continues to widen. The increase in awareness in the medical community has resulted in a much higher rate of patients getting diagnosed faster. The daily gratitude we receive for our services just might give you a ‘swelled head’, (pun intended), but our work has only just begun!
Celebrate our birthday by becoming an IAES Angel.
When you become an #IAESANGEL, International Autoimmune Encephalitis Society will send you an “I am an IAES Angel” badge and profile frame to place on your Facebook page or Website. As badges ‘take flight’ heralding IAES has been ‘touched by an angel’, others will take notice and they too may find their wings. Together, we will create a future where AE is eradicated from this world and only referenced in medical history books.
Tabitha Andrews Orth, President,
International Autoimmune Encephalitis Society