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LGI1 Research Survey

For anti-LGI1 Autoimmune Encephalitis patients and/or carers!


If you live in the United States, United Kingdom, Spain or Germany, please enroll!


A Pharma company wants to understand what the journey of an Anti-LGI1 Autoimmune Encephalitis patient is like and needs your help!

The research has two parts: an online survey and a one-hour telephone interview.  It addresses both patients and/or carers and you will be financially reimbursed for your time.

This is a GOLDEN opportunity for you to assist a Pharma company interested in developing new treatments for LGI1 patients directly. It is vital that they understand our AE journey and struggle! YOUR input will drive future progress for yourself and patients who will receive this diagnosis in the future. You can be a catalyst for change!

Survey information for the United States


Contact information

USA patients/caregivers

e-mail to enroll

Telephone: +19725980310


U.K. patients/caregivers

e-mail to enroll 

Telephone: +44(0)7841835281


Spain patients/caregivers

e-mail to enroll 

Telephone: +34934155228


Germany patients/caregivers

e-mail to enroll  

Telephone: +49(0)68989107860

Survey information for the

United Kingdom 

Survey information for Spain

Survey information for Germany

Germany LGI1 Survey

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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