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Lizzy McDaniel


Lizzy McDaniel, exceptionally gifted poet, scholar, and French translator, passed away on June 19, 2018 at the age of 35, after a battle with antibody-negative autoimmune encephalitis, a rare form of the disease. Lizzy was an extraordinary human being whose grace, wit, and original poetic practice changed all those who came into contact with her.

Lizzy was born at the Bethesda Naval Hospital, Maryland and grew up in South Carolina. She lived for many years in New York City, where she received her Bachelor’s degree and MFA in creative writing from The New School.  In addition to being a brilliant poet, Lizzy was a singer of opera. Her knowledge of philosophy, art, and music was endlessly rich. With great sensitivity and care, she gathered history’s secrets, often weaving them into her poems. Her unique poetic voice moves with agility between the fiery and the delicate, boldness and nuance. In her poems, interiority opens onto the world, and so transforms.

Lizzy is survived by her sister, Kate McDaniel, her mother Jean Fowler, her stepfather Tom Fowler and many loving friends. We honor her and remember her with love.


This moon is useless  

I must have another

planets chime in their pockets

I’ve missed them for how many weeks?

gas waits to be flame

the ocean may sit on my lap

with plenty left over

if I discover a new species

it will not be grateful

like a human thing

gasping on the lawn

but I’ve hatched a plot

to outsmart the squid

to read by its bioluminescence

Dostoevsky, Giordano Bruno and Poems of

A. O. Barnabooth

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.




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