Support For Individuals & Caregivers



Recommended Books About AE
To Add A Miracle: A Mother’s Journey (FALL) into the World of Autoimmune Encephalitis and Autism
Autoimmune Encephalitis and Related Disorders of the Nervous System
Brain on Fire: My month of Madness
The Girl on the 6th floor
Pulling Through: Help for Families Navigating Life-Changing Illness
In A Blurr
Unwillable
Glowing after the Darkness
Grateful
In Sickness and in Health
Abide in Me: A daughter’s illness, a father’s struggle, and a reminder that the miraculous isn’t just a thing of the past
Dalla corsia alla corsa (in Italian ‘From the Lane to the Race)
Schizophrenia or a Mysterious Illness: Julia’s Journey
The Brain’s way of Healing
The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma
The Blessing of a Broken Heart (recommended for loss and healing)
The Upper Hand: Leveraging Limitations to Turn Adversity Into Advantage
More Beautiful Than Before: How Suffering Transforms Us

Parent and Home Resources
Weighted Blankets to assist with sensory overload, anxiety, and insomnia
40+ Things to Put in A Calm Down Kit for Kids
Preparing for emergencies while still protecting yourself from COVID-19
Early Intervention Services
Disability and Emergency Preparedness
Summer Camps for the Disabled
Double H Ranch Camp
Serious Fun Network-a global community of camps and programs
Child and Home Safety
Home Safety~ Injury Prevention
Cooking Safety
Center for Parent Information

Driving after AE
What You Need to Know for Disabled Driving
Special needs and the practical driving test
Driver Rehabilitation Program
Driving after Brain Injury
Driving Following a Brain Injury
Guide to Car Modifications for People with Disabilities
A Guide to Disability Car Insurance for Disabled Drivers and Passengers
United Kingdom

Student Resources
School Guide for
Students with
Limbic Encephalitis
Student Loan Forgiveness
College Scholarships
30 Scholarships for Students With disabilities
Autoimmune Disorder Scholarships
Scholarships for Students with Disabilities
Comprehensive Guide – find the best scholarships & Tips to obtain Financial aide for students with Disabilitis
Disability Scholarships
Guide to Student and Parent Rights
College Grants for Disabled Students
College Guide for Students with Disabilities
Mission Possible: A Guide to College Programs
National Center for College Students with Disabilities
Best Schools for Students with a Learning Disability
Guide to Trade School For People with Disabilities
Resources for Younger Students

Disability Services
Complete of List State and Federal Organizations that Help Disabled Adults USA
Q & A Providing Services to
Chidren with Disabilities During COVID-19
Social Security Disability Benefits -Adults & Children (SSI application, Work trial, Disability after age 65)
Invisible Disabilities Association
ABLE Accounts
IRS Disability Tax Benefits
Tax Exemption for Property Tax
USA Utility Bill Assistance
Housing Grants
Americans with Disabilities Acts
Invisible Disabilities
Special Needs Trust
Organizations for People with Disabilities
Benefits for Children with Disabilities
Applying for Disability Benefits with Autoimmune Diseases
International Disability Rights
ACLU Disability Rights
Myth Busted: Trial Work Period
US Dept of Labor Disability Resources
Benefits and Insurance for People with Disabilities
U.S.A. Guide to Services

European Resources


Caregiving Resources
ARCH National Respite Network and Resource Center
The Circle of Care Guidebook for Caregivers of Children With Rare and/or Serious Illnesses
Rare Caregiver Respite Program– $500 Grant awarded
Tax-advantaged savings accounts for individuals with disabilities and their families
AE Caregiver Tips so you can Stay Health and Positive
Parent Caregiving Tips
Caregiver Stress: Tips for taking care of yourself
Caregiver Stress and Burnout
Caring for Someone with Memory Loss
10 Small Things You can do to Help Someone with Brain Injury
Help and Support for Caregivers
Caregiver Help Desk
Seizure First Aid Do’s & Don’ts
International Resources
Canada
Brain Injury Canada
Government assistance and funding for caregivers in Canada
Mexico
Organizations for People with Disabilities in Mexico
United Kingdom
U.K. Support for People with Disabilities
Respite Care England, Scotland, Wales & N. Ireland
Carer Support U.K.
Carers U.K.
Organizations and Agencies in Ireland
Middle East
Social Services
for Persons with Disabilities
in the Middle East
Nigeria
Nigeria disability resources
South Africa
Vocational Rehabilitation
Japan
Resources for Parents of Children With Special Needs
Disability Information Resources – Japan
Assistance for Persons with Disabilities- Japan

India
Health insurance for the disabled in India
How to apply for a disability certificate in India
Epilepsy and resources in India
Special Benefits for Persons with Disabilities in India
Philippines
Healthcare in the Philippines
Universal healthcare act Philippines
The Philippines Health System Review
The Philippines Disability Inclusion
International Resouces
Australia
Australian Autoimmune Encephalitis Consortium Project
Disability Support Pension
National Disability Insurance Scheme
Guide to the List of Recognised Disabilities
About People with Disability in Australia
What are the benefits of NDIS?
Housing Assistance
Medicare Benefits Scheme
Medicare Forms
Australian Network on Disability
The Victorian Patient Travel Assistance Scheme (VPTAS)
Hospital Stay-financial support and family accommodation
Commonwealth Respite
Carelink Centre Respite and Carer Support
Suppporting Carers
Respite Care
Carer Gateway service providers