December 27, 2023 | by Jeri Gore, Editor-in-Chief of the IAES Blog
Each year since I have had the honor of having this job as Editor-in-Chief for IAES we have created a calendar. This calendar can be used and shared by all administrators at IAES to note important information that may be coming due. We use it to note events such as seminar schedules, publication dates, anniversary dates of import, dates to have jobs and other projects completed, and anything any of us need to remember and/or have all of us keep in mind regarding what is coming up.
Creating a general calendar is something I’ve done for my family for years. Before we could share our calendars across electronic or social media platforms, we had a family wall calendar. I have kept those calendars as keepsakes. When I look back through them, they serve as a journal of sorts. I have a wonderful husband, four sons, and pets, and am blessed with amazing family and friends. We used our yearly family calendar to mark everything, so each family member would know what was happening daily. Sometimes when I look back and peruse these calendars such as the year our twins were born, I have NO idea how my husband and I ever had time to address basic needs such as sleeping and eating.
In 2019 I was diagnosed with AE, one of our sons was married and we moved. The 2019 Gore family calendar is heavily peppered with wedding-related meetings, fun events, house-buying, moving-related appointments, doctor’s appointments, and hospital stays. It was a year of big ups and big downs: celebrations and tears. Some folks love to write in journals and some document via pictures and videos. I journaled, in a way, via our annual Gore family calendar. Although my intent was not always for that purpose, at some point our family calendar transformed into a living journal that detailed the story of our lives. I love to occasionally look through them recounting the memories.
2023 is quickly winding into 2024 which has turned my direction to actively creating the framework for the IAES 2024 calendar. I am starting to look towards what 2024 will bring IAES and AE research in general. The webinars and events that will encompass and fill February/AE Awareness month are some of the biggest names in the field of Autoimmune Encephalitis, a star-studded line-up. The art show and annual awareness video. I wonder what new information will come out in 2024 that we can present to all of you on the IAES website, newsletters, and blogs?
As I approach the 5-year anniversary of my AE diagnosis and I have the honor to look back on the IAES calendars of the past few years I am amazed. In a word, all I can say is WOW! The amount of work IAES has accomplished is breathtaking. I am constantly in awe of the folks I get to call my IAES family, the work they accomplish and the lives they touch! The amount of research into AE, therapies for AE, awareness of AE, and clinical studies for AE and the rate that all of this has sped up is awe-inspiring. There is still a mighty long way to go for sure. We still have many mountains to climb regarding AE awareness, treatment options, and ongoing rehabilitative therapies. But, for all of us thousands of AE Warriors, caregivers, and clinicians, I believe our future is very bright.
I wish you all a happy healthy New Year! May your 2024 calendars be positive, and bright, and may the mountains you must climb this year be less difficult!
The best is yet to come!
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