Select Page
Points of Light Award: A beacon of light, love and hope for all of us!

Points of Light Award: A beacon of light, love and hope for all of us!

August 10, 2022

Tabitha Orth 300x218 - Points of Light Award: A beacon of light, love and hope for all of us!Our very own International Autoimmune Encephalitis Society President and founder, Tabitha Orth, has been honored with the Points of Light award! Tabitha & IAES would like to thank Points of Light for this honor. It is our fondest hope that all those suffering from Autoimmune Encephalitis, their caregivers, families, and friends have a less traumatic AE journey through the services IAES provides.

President George H.W. Bush, founder of Points of Light, said “The solution to each problem that confronts us begins with an individual who steps forward and who says, ‘I can help.’” President Bush founded the award in 1990 and formally recognized more than 1,000 volunteers as “points of light” during his administration.

President Bush saw the challenges facing the world as far-reaching and complex, and the solutions often felt out of reach. To tackle society’s greatest challenges and build a better future, he felt we must engage a wide range of people to make a positive difference in the world.

The Daily Points of Light Award honors individuals who change the world. Millions of people act on their power to do good every day, using their hearts, hands, and minds to help strengthen communities and solve persistent problems. On June 16th, Tabitha Orth, President, and Founder of International Autoimmune Encephalitis Society officially became the 7,315th “point of light”.

 

 

Below, please find comments from Mari Wagner Davis:

I nominated Tabitha Orth for the Points of light award because to me that is what she and the International Autoimmune Encephalitis Society have been to me, A Point of Light. A true beacon in the darkness of my illness. I was a nurse case manager who had seizures at work and was diagnosed with limbic encephalitis. I have no memories of my time in the hospital but seemed to become aware of my surroundings in day rehab. I then looked for information and support and found that the International Autoimmune Encephalitis Society provided the most accurate and helpful information available. As I recovered more, I was able to volunteer and, in that role, Tabitha helped me make use of the skills I still had despite my memory issues and fatigue. She is a never-ending cheerleader and a great role model as well as an expert at helping others understand the complicated medical world of Autoimmune Encephalitis. It was a no-brainer to see she was the perfect candidate for the award.

~Mari Wagner Davis

Click on the image below to subscribe to our mailing list:

subscribe - Halloween Ideas

Your generous Donations allow IAES to continue our important work and save lives! 

Tabitha Orth 300x218 - Points of Light Award: A beacon of light, love and hope for all of us!

 

On June 16 th, 2022, Tabitha Orth, President and Founder of International Autoimmune Encephalitis Society officially became the 7,315 th “point of light”. Recognized for the volunteer work she and IAES has done to spark change and improve the world for those touched by Autoimmune Encephalitis. The award was founded by President George H.W. Bush in 1990.

 

guidestar platinum logo 300x300 1 e1605914935941 - Points of Light Award: A beacon of light, love and hope for all of us!

 

 

Become an Advocate by sharing your story. It may result in accurate diagnosis for someone suffering right now who is yet to be correctly identified. Submit your story with two photos to IAES@autoimmune-encephalitis.org    

International Autoimmune Encephalitis Society (IAES), home of the AEWarrior®, is the only Family/Patient-centered organization that assists patients from getting a diagnosis through to recovery and the many challenges experienced in their journey. Your donations are greatly appreciated and are the direct result of IAES’ ability to develop the first product in the world to address the needs of patients, Autoimmune Encephalitis Trivia Playing Cards. Every dollar raised allows us to support research, raise awareness and personally help patients, families, and caregivers through their Journey with AE to ensure that the best outcomes can be reached. Your contribution to our mission will help save lives and improve the quality of life for those impacted by AE.  Trivia Playing cards 3 FB 500x419 - Points of Light Award: A beacon of light, love and hope for all of us! For those interested in autoimmune encephalitis clothing, mugs, and other merchandise, check out our AE Warrior Store!  This online shop was born out of the desire for the AE patient to express their personal pride in fighting such a traumatic disease and the natural desire to spread awareness. Join our AE family and help us continue our mission to support patients, families and caregivers while they walk this difficult journey.   AE Warrior Store 300x200 - Points of Light Award: A beacon of light, love and hope for all of us! 

Be a part of the solution by supporting IAES with a donation today.

why zebra - Aphasia as a Symptom of Autoimmune Encephalitis
Independence Day!

Independence Day!

June 29, 2022 | By Jeri Gore

If you have Autoimmune Encephalitis or are a loved one or caregiver of someone with AE, you know dependance. The AE Warrior is dependent. We are dependent on many things be it friend’s and family’s ability to take us to doctor’s appointments, rehab, food stores or for a simple ride around the countryside. We are dependent on canes and walkers, computers, and sign language for communication. We can be dependent on stair or wheelchair lifts. We are dependent on medical teams to understand AE and suggest best treatment options. We are dependent on our AE family as a community to get us thru a particularly bad day or week or month. We are dependent on the minds and hearts of others to help, accept, understand, and love us.

If you live in the United States, you know July 4th, every year, is a national holiday. It is Independence Day. It is a day much celebrated with family or friends, with fireworks and cooking out. It is a day of fun and laughter and overall joyful celebration.

If you are an AE Warrior, you know the need and desire for independence. Our dependence on the many things we need to survive AE may not have been on our mental radar before AE took over our lives in one form or another. For an AE Warrior, independence may mean many things. It may mean not needing someone’s help to turn on the lights or start your computer. It may mean no longer requiring a cane to be able to walk. It may mean no longer needing one infusion or another. For me, independence was the ability to drive again. That day is forever seared into my brain. I felt like driving down some country road, windows wide open, sun on my face and singing at the top of my lungs. It also came when I was once again able to concentrate enough to be able to read and understand a book. I felt like I had conquered a giant mountain!! I felt independence and it felt good, really good! I wanted to shout it from a mountain top!

In the spirit of celebration, I suggest we honor our AE independences big and small. We may or may not celebrate with cook outs and fireworks but maybe a little ‘happy’ dance in the kitchen or phone call to a loved one. May we learn to commemorate those small and large events that mark progress in our AE journey. This may not be easy some days but maybe, just maybe if we celebrate these small milestones of progress, it will help propel us onward on those other days when forward progress seems slow or nonexistent.

Happy AE Independence Day to all of you AE Warriors, loved ones and caregivers!!

Independence Day 2022 blog fb 500x419 - Independence Day!

 

 

Click on the image below to subscribe to our mailing list:

subscribe - Halloween Ideas

Your generous Donations allow IAES to continue our important work and save lives! 

Tabitha Orth 300x218 - Independence Day!

 

On June 16 th, 2022, Tabitha Orth, President and Founder of International Autoimmune Encephalitis Society officially became the 7,315 th “point of light”. Recognized for the volunteer work she and IAES has done to spark change and improve the world for those touched by Autoimmune Encephalitis. The award was founded by President George H.W. Bush in 1990.

 

guidestar platinum logo 300x300 1 e1605914935941 - Independence Day!

 

 

Become an Advocate by sharing your story. It may result in accurate diagnosis for someone suffering right now who is yet to be correctly identified. Submit your story with two photos to IAES@autoimmune-encephalitis.org    

International Autoimmune Encephalitis Society (IAES), home of the AEWarrior®, is the only Family/Patient-centered organization that assists patients from getting a diagnosis through to recovery and the many challenges experienced in their journey. Your donations are greatly appreciated and are the direct result of IAES’ ability to develop the first product in the world to address the needs of patients, Autoimmune Encephalitis Trivia Playing Cards. Every dollar raised allows us to support research, raise awareness and personally help patients, families, and caregivers through their Journey with AE to ensure that the best outcomes can be reached. Your contribution to our mission will help save lives and improve the quality of life for those impacted by AE.  Trivia Playing cards 3 FB 500x419 - Independence Day! For those interested in autoimmune encephalitis clothing, mugs, and other merchandise, check out our AE Warrior Store!  This online shop was born out of the desire for the AE patient to express their personal pride in fighting such a traumatic disease and the natural desire to spread awareness. Join our AE family and help us continue our mission to support patients, families and caregivers while they walk this difficult journey.   AE Warrior Store 300x200 - Independence Day! 

Be a part of the solution by supporting IAES with a donation today.

why zebra - Aphasia as a Symptom of Autoimmune Encephalitis
Letters to Our Before AE Selves, Part II

Letters to Our Before AE Selves, Part II

February 22, 2022 | AE Awareness Month Special Series

Introduction from the IAES Blog Team:

Welcome to Part II of the IAES Blog series for AE Awareness month 2022; Letters to Our Before AE Selves. We are privileged to present the following heartfelt letters written by AE patients (AE Warriors) and caregivers to themselves, or the loved one they care for.

The following compilation of letters expresses the thoughts and feelings we would write to our ‘Before Autoimmune Encephalitis’ selves. They express what we would want ourselves to know, or our loved ones to know, if we could have been given a foreshadowing of how our lives would be pivoted on its axis due to autoimmune encephalitis.

Some letters are from our loved ones to us, and some are from us to ourselves. Long or short, happy or sad, all are heartfelt and are sure to lift your spirits. We hope you thoroughly enjoy Part II of this two-part series.

~

The first letter we share is from IAES member and AE Warrior Angie Fitch to herself:

Dear Angie,

You are so blessed! Get out there and walk your dogs more because there may come a day you might not be able to.  Enjoy time with your friends, meeting new people and going outside because a day may come that you are barely able to get off the couch and become isolated. Take pride in being able to multitask, even if that only means being able to walk and do something else at the same time. Go for that run because one day you may give anything to be able to do it, so do it!

Don’t take for granted the ability to speak the words you intend to say because one day those words could leave your mind. Talk about and cherish memories because one day they may not exist anymore. Enjoy the sounds of the world around you as one day those very sounds may cause you extreme pain and anxiety.

Don’t ever take for granted driving a car, cooking dinner, swinging a golf club, having a conversation, going to the grocery store, walking, talking, breathing, or sleeping because these things are not a given for everyone. Things come easily for you, and you learn fast. You’re a hard worker, very active, social, and fun. Cherish these qualities as everything can change in a moment and the ‘simple’ things you take for granted today, may be gone tomorrow.

Finally, never lose hope no matter what life throws at you. Make sure to count your blessings every day, even when the world comes crashing down on you. Always count your blessings; because there are so many, and those blessings are what will help you to never lose your strength, hope and happiness. No matter what life takes from you, it can’t take that.

Love, Angie

~

The second letter is from Kimberly Sorin to her grandson Colban Sorin:

Dear Colban,

You came to live with me a confused and sad little boy. Eventually you became vibrant, funny, and always smiling and laughing. Over the years, as you get older, many things will happen that will shape you into the man you’re to become. There may be days when you feel like there’s no reason to smile. There may be lots of tears and anger, moments may be forgotten. These things may come back to you but in a different manner. Don’t lose your sense of self, keep fighting…and know that I will always be right there by your side.

Always, love you to the moon and back,

Grandma

~

The third letter is from IAES member and AE Warrior Ryann Henn to herself:

Dear Ryann,

Things right now are going okay, but there will be answers to questions you had about yourself and the way you have been acting and feeling. You need to know there are so many people out there that care and love you more than you ever will know and expect. Everything will be okay. I know you are scared about the future, but the people that love you are here to guide you. They will never leave your side. You will feel love like you never have before, and it will inspire you to work hard in recovering. Don’t lose touch with yourself and what you are most compassionate about, animals, people, and creativity. And take it easy on yourself, it’s okay to take a nap.

With lots of love, Ryann

~

The fourth letter is from IAES member, IAES Chief-Resilience Officer and AE Warrior Tessa McKenzie to herself:

Self,

First, let me assure you, you’re not crazy.  God is with you and you will feel okay again.

You are the 1 in 100,000 in this “boot camp for the soul” called autoimmune encephalitis. 

Doctors can’t diagnose you right now and loved ones don’t recognize you, but your brain is inflamed and it’s not your fault. 

There is a lot that doesn’t make sense right now.  When your soul is weary, and God is nowhere to be found, know he’s still there and keeps his promises.  When prescribed medications don’t work, know the right ones will eventually provide respite to your exhausted body.

Your life will go on past this experience – the sleepless 60 days, disorientation, panic, visual impairment, tachycardia, and memory loss…

And one day, you won’t view this as much of a curse as a unique gift to pay forward in empathy for those you feel alone, suffer, and are misunderstood. 

Above all, remember, “all things come together for the good of those who love God (Romans 8:28).”

Love,

Me

~

The final letter is from IAES member, AE Warrior and blog editor Jeri Gore to herself:

Dear Jeri,

Wow! Where do I even begin? Sometimes I feel like I want to write you a very long letter and sometimes it is short and sweet. I suppose today it falls somewhere in between.

First of all, Jer, you always like things black and white. You like the lines of life to be clear, precise, and not muddled. Well, Chica, if nothing else, the next few years will show you that this beautiful life you live is anything but black and white and the lines are muddled in a wonderful array of color and emotion. You may think that happenings in your past were tough or trying but, in all actuality, they set you up for what has become the most amazing journey you have taken to date. You will see confusion on the faces of your loved ones, you will feel pain and sadness in their eyes, and you will want with all your heart to take it from them and carry it yourself. You will learn the meaning of love like you have never known it to exist. You will see your life and the lives of others transformed by an illness so new to so many. Above all, Jer, you will know the meaning of the word grateful on many levels. You will be grateful for your past and your present because it has brought you to this place and to these people that have become a family of Warriors like you never knew existed.

Love always, Jeri

 

 

Click here or the image below to subscribe to our mailing list:

subscribe - Halloween Ideas

Your generous Donations allow IAES to continue our important work and save lives! 

 

guidestar platinum logo 300x300 1 e1605914935941 - Letters to Our Before AE Selves, Part II         Become an Advocate by sharing your story. It may result in accurate diagnosis for someone suffering right now who is yet to be correctly identified. Submit your story with two photos to IAES@autoimmune-encephalitis.org     International Autoimmune Encephalitis Society (IAES), home of the AEWarrior®, is the only Family/Patient-centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. Your donations are greatly appreciated and are the direct result of IAES’ ability to develop the first product in the world to address the needs of patients, Autoimmune Encephalitis Trivia Playing Cards. Every dollar raised allows us to raise awareness and personally help Patients, Families, and Caregivers through their Journey with AE to ensure that the best outcomes can be reached. Your contribution to our mission will help save lives and improve the quality of life for those impacted by AE.  Trivia Playing cards 3 FB 500x419 - Letters to Our Before AE Selves, Part II For those interested in face masks, clothing, mugs, and other merchandise, check out our AE Warrior Store!  This online shop was born out of the desire for the AE patient to express their personal pride in fighting such a traumatic disease and the natural desire to spread awareness. Join our AE family and help us continue our mission to support patients, families and caregivers while they walk this difficult journey.   AE Warrior Store 300x200 - Letters to Our Before AE Selves, Part II 

Be a part of the solution by supporting IAES with a donation today.

why zebra - Aphasia as a Symptom of Autoimmune Encephalitis
Letters to Our Before AE Selves, Part II

Letters to Our Before AE Selves

February 9, 2022 | AE Awareness Month Special Series

Introduction from the IAES Blog Team:

In celebration of AE Awareness Month, we are pleased to bring you a two-part IAES Blog series of letters written by AE patients (AE Warriors) and caregivers.

The following compilation of letters expresses the thoughts and feeling we would write to our ‘Before Autoimmune Encephalitis’ selves. They express what we would want ourselves to know, or our loved ones or caregivers to know, if we could have been given a foreshadowing of how our lives would be pivoted on its axis due to Autoimmune Encephalitis.

Some letters are from our loved ones to us, and some are from us to ourselves. Long or short, happy or sad, all are heartfelt and are sure to lift your spirits. We hope you thoroughly enjoy Part 1 of this two-part series.

~

 

The first letter is from IAES member & AE Warrior Kerry Jones to himself:

Dear Kerry,

You’re about to begin a journey that you’d rather not take. It will be rough, it will be challenging, and it will change you forever. But count your blessings, you’re going to be one of the lucky ones. Many of your memories will be gone, but that will open the door for new memories. You will reconnect with your estranged son and become a grandfather to his son. And all the bonds of love in your family will be strengthened. But most of all, learn to cherish every moment and take nothing for granted. Love and share your newfound strength with those less fortunate than you.

Love, Kerry

~

 

The second letter is from IAES President and Founder Tabitha Orth to herself:

You Have Entered: The Twilight Zone

It was December 2013, when I was re-arranging my sock drawer, that I came upon a sealed envelope with the words “Read Me. From Me. February 2022” written on it. The envelop appeared to be crisp and new as if it had just been placed there.

This is strange, I thought. That is my handwriting, but I don’t remember writing this. What the heck is going on? I thought, as I lifted it up with a shaky hand. I looked around the room, as if for answers, and felt like I was in the twilight zone. I could even imagine hearing the music from the TV series.  I sat down on the edge of my bed and carefully opened the letter.

Hi. It’s Me.

I know.  This is weird. Don’t freak out. I recognize my own writing. Yes. Take a deep breath.

I don’t have much time. Time, now there’s a story. Bottom line, it’s not linear.

I’ve been given a chance to punch through time to leave this for Me in 2013. Look, I need to tell Me something. I’m sorry I must tell Me this, but I need to know it NOW. It will help. At this point in my life, I think I’ve navigated the hardest challenges that life has offered. I’ve had much bigger long-term life challenges than the average person and I think the hardest part is over.  I’m really sorry. The hardest part is yet to come.

Now, I know hearing this from future Me is shocking, but I’m going to go through a frightfully horrific period in my life. It can’t be stopped. The wheels are already in motion. I’m sorry. Trust this is real and that it is true. You will know it is true in the not-too-distant future.

What I want you to know is that I get through it. It is now 8 years in the future, and I survived. Not only that. I thrived. My eyes are wide open to what is most important in my life. I’ve learned that I can love deeper, give more of myself, appreciate all the little things I took for granted that each day brought. The garden, the seasons, being kind to strangers, going out of my way to do or say something kind. Appreciating life. Enjoying every moment of life. I came through a very difficult and scary time and overcame adversity. Jim and Matthew are thriving and happy. Life is good. It’s better than good. Hold this knowledge in your heart beginning right now.

Now, put this back under the socks. I will find it again several years from today. I would have forgotten about it when I find it again, but I will remember its message when I recognize what it is. I’ll have some memory problems when I find it again, but I’m great. No worries. I’m ok. 

After all these years, I can’t explain this magic. I have continued to be baffled by it. I can only think that miracles happen. Magic is real. Magic is the power of love. Through love anything is possible. That’s all I’ve been able to work out so far. Maybe time will tell more.

~

 

The third letter is from IAES member & AE Warrior Laura Melcher to herself:

Dear Laura,

Life isn’t easy, you work and look after your kids and do it without help from anyone.  Enjoy this life you have now, because after Autoimmune Encephalitis, everything changes. This life is everything you wanted. You and the kids have everything you need. You are fit, healthy and able to provide.

One day you won’t be able to go back to that job you go to every day, and you will miss it SO MUCH.

Everything you took for granted will be hard. How do you pay the bills alone when you are medically unable to work? You can stand for 9 hours a day now, THAT is a blessing when you can’t stand more than 10 minutes. When everything you took for granted is hard, walking, standing, household chores, reading an email, taking a phone call, being a Mum, showering, just existing.

You think life is hard now, NOW you are blessed.

Enjoy it while you can.

Kind regards, Laura

~

The fourth Letter is from IAES member & AE Warrior Celia Fermon to herself:

To my old me,

I want to tell you that sometimes the road in life gets difficult. It can be exhausting. You have learned by now that you have the capacity to go thru all the journeys. You will find that in the worst moments you will always have an angel by your side. Do not be afraid. You will, also, receive a little angel that has four furry paws that will always be watching you and taking care of you. Do not worry for you will learn that in your weakness is your strength.

Love, Celia

~

The Fifth letter is from IAES member and AE Warrior Sharon Bassell to herself:

Dear Sharon,

It’s me! The YOU before AE.

It’s been nearly 7 years since that vile antibody entered your system and gave you AE.

I’ve watched you stumble around in the dark for so many years looking for answers, cures, and hope….and where was l?

I wish, I wish I could have talked to you before it all happened.

I may have been able to save you so many tears, anger, confusion and maybe made acceptance and progress happen sooner!

 

BUT! Better late than never!

I’m here now, and here is what I wished you’d known before.

* NOBODY could have predicted whether you would have ever been cured.

* NOBODY could ever have predicted how much progress you would have made.

You have an aggressive, angry, strong, resilient antibody – I bet nobody told you     

that!

 

* Your life will never be the same again, or even anything resembling it – I bet

nobody told you that!

 

* Remember that career in Nursing, that was the very core of your being?

The role that you were born to do.

The thing that you dedicated 44 years of your life.

Well! It’ll ALL be gone in ONE DAY!

The day you were diagnosed with AE!

 

* You’ll never be able to drive a car again, your clean license of 42 years- another

thing that’ll be gone at a stroke of a pen!

 

You had the right to know that things were going to get a lot worse before they got better….

 

You needed to know about neurofatigue, flooding, visual deficits, memory loss

(Both short- and long-term memory).

Loss of certain “Life Skills “……remember how good you were with all things before IT?

Well, not anymore!

I should have told you about the personality changes, mood swings, impulsivity,

the tears, lack of sleep, multitasking difficulties, and problems with processing.

 

I’m not painting a very pretty picture here I know, but, I believe, knowledge is power!!!

I wish you had even a third of this information before AE got its grip on you!

Your recovery and acceptance would have been so much smoother and quicker.

I know that your medical specialists will focus on many different types of drugs, but they didn’t tell you that you will likely have to reschedule the rest of your life around the administration of these medications, just to keep you from relapsing!

Whilst the right specialist and medication treatment is pivotal, I bet they didn’t tell you that you needed to get into a Brain Injury Rehabilitation Program as soon as possible, did they?

BRAIN INJURY REHABILITATION is what will turn your life around! I wish, I wish I could have told you way back then.

These professionals will focus on YOU as an individual, they’re experts, they’re educators, they’re facilitators, they’re game changers!!!

I also wanted to tell you to link up with a support group like the IAES, you need to make your life easier, and learn from people who’ve “been there “……..

I see you now, and I’m so sorry that your treating doctors didn’t look “outside the box “and suggest adjunct services. Hopefully, this Awareness Project will enlighten many healthcare professionals to have the discussion in the beginning!

I see you know, you’ve done so well, I’m proud of you. You’ve managed without me……but how I wish I could have written this letter to you …. myself “Before AE”

I love you

~

The sixth letter is from IAES member, IAES staff member and mighty AE Warrior Mari Wagner Davis to herself:

Dear Mari,

You don’t know this yet, but you are going to find out in the next 5 years what you are truly made of. There will be times when you want to give up, give in, lay down. There will be times where you will be tested, when you will cry, tell your husband to let you go, but you may already know this, there happens to be a lot of fight and feisty ignorance in you. You will use what you have practiced as a nurse for the last 30 years and complain about every small thing that you find “wrong”. What you will later learn is that a part of it is your brain injury, as well as your anger that this disease has brought and that your injured brain will just not let go of. And no, you are not always wrong, sometimes, they are not practicing up to your standard, you will just have to learn to live with that. What you will also later learn is that life is too short and that there is almost always something to find good in most situations and people. (oh, there may be exceptions) but for the most part you will see the good. You missed seeing that in the past, but you won’t after Autoimmune Encephalitis

You, also, do not yet know that perhaps you learned all those case management skills and ways of finding resources not only to help yourself, but to help others. You will find amazing people at the International Autoimmune Encephalitis Society. You may grieve the loss of your job and for a time a sense of purpose, but they will give you purpose that your life will lack and make the most of your skills. You will end up helping people who need it more than you ever thought someone could need.

You already know this, but you have a great husband, but you will find out what some people never get to learn, that there is a love so deep that someone will take hours of their time to walk you through something that would have taken you 5 minutes in the past. You always knew Geoff was a great man, but you will learn that there is a depth to that strength that you in the past, deep down, you knew was there, but did not see on a day-to-day basis. You will see it now daily. You knew you were glad that day when you first met him, you just did not know how important it would be to you. No, you never would have asked for this disease, who in their right mind would, but you will find that as you improve ( I hate to tell you this but it will take longer than they tell you) you find a strength you did not know you had, a sense of humor that can get you through many things and an ability to learn new ways to do things to help you be more functional. Good God I hope my next letter to myself has more to tell you about how much further you have come. You will just have to wait and see won’t you.

Mari

 

Click here or the image below to subscribe to our mailing list:

subscribe - Halloween Ideas

Your generous Donations allow IAES to continue our important work and save lives! 

 

guidestar platinum logo 300x300 1 e1605914935941 - Letters to Our Before AE Selves         Become an Advocate by sharing your story. It may result in accurate diagnosis for someone suffering right now who is yet to be correctly identified. Submit your story with two photos to IAES@autoimmune-encephalitis.org     International Autoimmune Encephalitis Society (IAES), home of the AEWarrior®, is the only Family/Patient-centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. Your donations are greatly appreciated and are the direct result of IAES’ ability to develop the first product in the world to address the needs of patients, Autoimmune Encephalitis Trivia Playing Cards. Every dollar raised allows us to raise awareness and personally help Patients, Families, and Caregivers through their Journey with AE to ensure that the best outcomes can be reached. Your contribution to our mission will help save lives and improve the quality of life for those impacted by AE.  Trivia Playing cards 3 FB 500x419 - Letters to Our Before AE Selves For those interested in face masks, clothing, mugs, and other merchandise, check out our AE Warrior Store!  This online shop was born out of the desire for the AE patient to express their personal pride in fighting such a traumatic disease and the natural desire to spread awareness. Join our AE family and help us continue our mission to support patients, families and caregivers while they walk this difficult journey.   AE Warrior Store 300x200 - Letters to Our Before AE Selves 

Be a part of the solution by supporting IAES with a donation today.

why zebra - Aphasia as a Symptom of Autoimmune Encephalitis

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

CONTACT US


352-527-2470

IAES@AUTOIMMUNE-ENCEPHALITIS.ORG

Autoimmune Encephalitis Trivia Playing Cards

Translate »