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Dr. Dalmau received his award today

Dr. Dalmau received his award today

 October 31, 2017 | Gene & Tabitha

Dr Josep Dalmau, who identified the first antibody, ant-NMDAr, in autoimmune encephalitis in 2007 and many other antibodies since, has been recognized with the King Jaime I award in clinical Autoimmune Encephalitis medicine.
This year marks the XXIX edition of the Awards dedicated to the promotion of Science, Research and Entrepreneurship in Spain. The awards, of the best paid in the country, consist of a gold medal, a diploma and a financial prize of $ 100,000 with the commitment to reinvest a part in Spain. Santiago Grisolía, founding President of these Awards, was in charge of communicating to the winners this recognition, in whose election 18 Nobel Prizes have participated, as well as a broad representation of the Spanish business community, last June.

Throughout these almost thirty years, the Rey Jaime I Awards have established themselves as the most prestigious awards recognizing the research and business activity carried out in Spain.

In these years, 140 scientists have been awarded, number one in their fields, of which 122 are part of the ACC (High Consultative Council), entity created in 1998 to advise the Presidency of the Generalitat Valenciana in the field of research, development and technological innovation, as well as to prepare reports, reports and opinions commissioned by the President of the Generalitat.
https://www.ub.edu/web/ub/en/menu_eines/noticies/2017/10/056.html?

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Do You See Me as I Really Am?

Do You See Me as I Really Am?

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Fund Raiser wins the Zebra Award

Fund Raiser wins the Zebra Award

May 5, 2017 | Barbara Vujaklija, RN

And the Zebra award goes to…..Michelle Skimmons!

Michelle heard that the Max Challenge Gym in Fairless Hills PA was holding a Day of Giving. A fundraiser for a charity of owner Amy Petrino Potpinka’s choice. So Michelle put on her best persuasive smile and beat out the other charities to have all the proceeds go to non-profit IAES.
The public were invited for free for the day and asked to donate. Gym members were asked to donate $10 each. An astounding $6,800 was raised for our non-profit IAES.
in just one day!
When I spoke to Michelle she told me that Amy gave her the opportunity to spread awareness of AE to the gym staff and to speak about it to each group as they arrived at the gym. Well done Michelle.
When I asked her how it felt to raise over $6,000 for the non-profit IAES.
Michelle stated that it was “wonderful to give back to the non-profit IAES.
group that helps so many people”.
When I questioned Michelle about whether she would attempt another fundraiser and if she had any advice for others thinking about it she said that she would love to do another one but different focusing on raising awareness and that anyone trying to do this should “allow plenty of time especially to explain about AE as it’s still so rare”.Michelle invited anyone thinking about a fundraiser to reach out to her.
On behalf of IAES I would like to thank the Max Challenge Gym and all who participated and of course Michelle for all her hard work.

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The evolution of science

The evolution of science

 

March 29, 2017 | Barbara Vujaklija, RN

Blog March Magnets in the form of lodestones have been used to supposedly improve health since the ancient Greeks. Again in the middle ages they are mentioned in healers texts. During the 18th century Doctor Franz Anton Mesmer held parties in his Paris saloon and by using a weak electromagnetic field convincing people he was healing minor ailments. His ‘show’ often had young ladies fainting and became the basis for mesmerising or hypnotism. Magnets as healing agents had a resurgence in the mid 1900s. Magnetic jewelry was supposed to restore balance to the body’s fluids. Later after work on the atomic level proved that electricity and magnetism are different aspects of the same phenomena and further research in recent years has shown that at high levels could help to heal bones. Electromagnetic therapy if not mainstream medicine is being used in some cases of stubborn bone healing. However that does not mean that gloves, braces and socks etc with weak magnets in them are going to do you any good. They are just that ‘too weak’. There is no scientific evidence that weak magnets have any effect on the body. The same is true for Copper by the way and limited diets, unless you have an allergy to a certain food, can be downright dangerous. Depriving yourself of one type of substance can cause imbalances in the body. I use these examples to show how the scientific process is followed in treatment protocols. Let’s take AE for example. Following the scientific process doctors would first make observations about how patients respond to different drugs. Next they would form a hypothesis that a certain drug worked better than others. After establishing that a drug has worked on a number of patients experimentation would start by broadening the number of patients given the drug. After the results of the experiment are analyzed a conclusion is drawn that the drug in question does in fact work. The hypotheses must then be tested and if the results are repeated the medication becomes part of that treatment protocol. Electromagnetism followed The same path. The point of this ramble is to remind everyone and inform new members that the treatment protocol for AE has been through this process and is considered scientific fact. In other words it usually works. As the disease progresses and changes so to must the treatment keep pace. Again scientific observations tell the doctors which direction to take the treatment. Observations include how the patient presents, what symptoms persist, whether the disease is progressing and if so how aggressively, or if it is remitting. Data that by this time has usually been collected also guides our scientist Physician. The type of antibody if known is important as is where the disease process is. At every stage the proven science leads the way to a successful outcome. Around the world researches continue to use the scientific method to increase our knowledge and provide better treatments. Each knowledgeable physician working with an AE patient is following the scientific method to adapt treatments to respond to individual patients. Barbara Vujaklija, RN

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Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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