AE Awareness Month 2020
International Autoimmune Encephalitis Society founded AE Awareness Month in 2020 to shine a light on Autoimmune Encephalitis. AE Awareness Month is the biggest month of the year for the AE community. It is a time when the entire community comes together to raise awareness of this treatable group of diseases.
Our main goal is to raise awareness among the public and medical community, especially first responders such as Psychiatrists and Emergency Room Clinicians, about AE and its impact on patient’s lives and the lives of the family members, loved ones and caregivers who support them.
Anyone can get involved in this International effort. Get involved today to shine a light of autoimmune encephalitis.
1.
Autoimmune Encephalitis Trivia Playing Cards
AE Trivia Playing Cards
IAES in collaboration with Dr. Josep Dalmau has created the first product in the world specifically addressing the needs of the AE Warrior™ and those impacted by AE. ALL proceeds will support Dr. Dalmau’s research group. Stay tuned for the announcement of this exciting educational and rehabilitation tool. It is destined to become the most vital product anyone touched by autoimmune encephalitis should purchase. A true game changer in helping you to become a strong advocate, receive an outstanding educational foundation about AE doubles as a rehabilitation tool!
2.
Become an IAES Angel and receive a facebook picture frame announcing that you have
The IAES Angel has lifted IAES upward by ensuring that comfort, guidance and improved health is brought into an AE patient’s life. IAES Angels are motivated by their Spirit of giving. They are Champions in raising AE awareness.
When you become an #IAESANGEL, International Autoimmune Encephalitis Society will send you this badge and profile frame to place on your Facebook page or Website. As badges ‘take flight’ heralding IAES has been ‘touched by an angel’, others will take notice and they too may find their wings. Together, we will create a future where AE is eradicated from this world and only referenced in medical history books.
3.
AE Warrior and AE Caregiver Royal Registry Certificates
Bestow these certificates on your AE Warrior™ or Loved ones
The Royal IAES Registry designates The AE Warrior™ and AE Sentinel with Royal Title. In recognition of their heroism under fire. The Royal IAES Registry is the highest honor to be bestowed upon those engaged in the mighty autoimmune encephalitis battle. Without warning and within an instant, these unprepared citizens were thrust unto a perilous fire raging battlefield. To fight demanded that they dig deep into the depths of their soul for the inner-strength they had to summon to save their life or the life of the one they loved. This act is so rare IAES sanctifies and affirms by sealed decry the bestowing of Royal Title into the IAES Registry.
4.
Watch and Share our Awareness video AE Warriors Stepping Forward
AE Warriors Stepping Forward
This inspiring video shows the wide age range and diversity of AE patients, it explains what AE is in simple terms and provides key RED FLAG warnings to any medical professional who views it. This is IAES’ 4th annual awareness video. Proceeding videos have had a powerful impact on raising AE awareness and has lead to many patients receiving an accurate diagnosis.
5.
Get your Story in your Local Newspaper or Television Station
Breaking News!
IAES has done the work for you. Download our press release and directions. Reports will use quotes from experts cited in the press release as well as contacting the doctor who diagnosed you. This raises awareness on a much larger scale and only involves a few simple steps.
6.
Hold a FUNdraiser or Awareness Event at Work, School or Your Home
By going to our FUNdraiser Page, you will see several ideas for all ages that allows you to have FUN and raise awareness for AE at the same time.
7.
Assemble AE Survival Kits
Share your love and encouragement by purchasing a survival kit, (Goodies not included). IAES has created 11 different variations of these kits that are bound to bring smiles of pleasure to those who receive them. Create a kit for your AEWarrior™, AE Mom, Doctor, Psychiatrist, Nurse, Infusion day, Child or Caregiver. These kits are available year-round.
8.
Raise Awareness with IAES Candy Bar Wrappers
IAES has created 14 unique candy bar wrappers you can raise some sweet awareness. These free wrappers include sentiments for people in the AE community and public. These wrappers can be given as your simple act of kindness or used as a fundraising vehicle. They are a wonderful way for children and siblings to get involved in fundraising and raising awareness as well. Candy wrappers will be available throughout the year.
9.
Print and share this AE Infographic
Post this Infographic throughout the month on your social media platforms and also download it onto card stock paper and give it out at school, work, gym or your place of worship.
10.
The IAES Virtual Art Show
Tour the IAES Virtual Art Show and share the link on your social media platforms. Showcased is art in a variety of forms done by patients, siblings and caregivers of all ages. Experience a special insight into AE through their eyes and experiences.
Tabitha Andrew Orth, President
Dr. Daria Muir, Secretary
Gene Desotell, Vice President
Oksana Sweeney, C.P.A, Treasurer
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