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THE HERD April 2019 ~ 1st ed

image 6 1 - THE HERD April 2019 ~ 1st ed


Selected Highlighted News in the field of Autoimmune Encephalitis April 2019 1st edition

Most popular article of the Month: Syndrome and outcome of antibody‐negative limbic encephalitis Most Viewed/Shared Video of the Month: Flooding, Brain injury Most Popular IAES Handout: Recovery and Relapse Profile Frame for you FaceBook PictureRaise awareness globally and easily, Open Access:Characteristics of Seizure and Anti-epileptic Drug Utilization in Outpatients With Autoimmune Encephalitis Clinician’s Corner: New testing profiles relevant to the evaluation of autoimmune encephalopathy, dementia, and epilepsy FUNDRAISER: AE Zebra Brooch IAES Membership Program

Most popular article of the Month:

Most popular article of the Month:

Despite the discovery of new antibodies, 7% of LE patients remain seronegative. Antibody‐negative LE is more frequent in older males and usually develops with predominant or isolated short‐term memory loss. Despite the absence of antibodies, patients may have an underlying cancer and respond to immunotherapy.

Most Shared Video in April: 

What do we mean when we talk about ‘flooding’? This video explains it. It is a typical symptom people with AE or any disease that involves brain injury experience. You will find this video on the ‘Living with AE‘ page of our website along with other videos on topics/symptoms we all experience such as over stimulation, Neuro fatigue, memory loss and more. It’s a great way to learn and to understand what the person with AE is going through.

Most Popular IAES Handout of the Month:Recovery and Relapse

(all printable handouts are found on the Living with AE page of our website) 

IAES FaceBook Profile Frame: 

Let the world know about Autoimmune Encephalitis and where they can find help and information by using this profile frame.  Your participation helps us spread awareness and directs people to the information they need. 

Characteristics of Seizure and Antiepileptic Drug Utilization in Outpatients With Autoimmune Encephalitis

Newly published Research from China. Of particular interest if you have seizures as one of your symptoms of Autoimmune Encephalitis


 Patients with AE have a high rate of seizure remission after proper immunotherapies. The long-term use of antiepileptic drugs (AEDs) appears not be necessary to control their seizures. Compared with adults, young patients are more likely to become seizure free without AEDs. The risk factors that contribute to refractory seizure or seizure relapse may include anti-GABABR encephalitis, SE, and cortical abnormalities. 


Clinician’s Corner

A number of disorders of the central nervous system previously considered neurodegenerative and untreatable are now recognized as having a treatable autoimmune cause. Improved recognition is facilitated by an expanding profile of neural-specific autoantibodies and when detected in serum or cerebrospinal fluid, these IgG biomarkers reliably predict an autoimmune cause for neurological dysfunction in patients presenting with rapidly progressive brain disorders. New testing profiles relevant to the evaluation of autoimmune encephalopathy, dementia, and epilepsy are now available at Mayo Clinic. A presentation by Andrew McKeon, MB, BCh, MD 

Artist, Julia King, has created this brooch from her original artwork of her ‘excited zebra’.  Each order placed will result in a $5 donation to IAES in support of our mission. 

International Autoimmune Encephalitis Society has just launched a Membership Program:  

You can now become a card carrying Member of IAES and support our mission through a membership pledge.  A stunning membership card has been artfully designed for each category. There are 5 distinct membership categories: Basic, Sustaining, Leadership Circle, Gold and Life Time. Additionally, IAES will be sending a small thank you gift that has been specifically chosen for each category, as a token of our appreciation for your pledge of support.

Your donations are greatly appreciated. Every dollar raised allows us to raise awareness and personally help Patients, Families and Caregivers through their Journey with AE so that best outcomes may be reached. Your contribution to our mission will help save a life and improve the quality of lives for others.  Be a part of the solution by supporting IAES.




International Autoimmune Encephalitis Society (IAES) is a Family/Patient centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey.


Driven by the knowledge that “Education is Power”, International Autoimmune Encephalitis Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.  Raising awareness of Autoimmune Encephalitis across the many specialties of medicine that come in contact with these disorders and with the general public to ensure a timely and accurate diagnosis resulting in an aggressive treatment plan for best outcomes.

“Empowering victims of Autoimmune Encephalitis and their caregivers through Support and Education”.

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