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December Newsletter

Favorite Highlights from the month

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Announcements: IAES has added a new page on our website for our Spanish speaking members. 


Anuncios: IAES ha agregado una nueva página en nuestro sitio web para nuestros miembros de habla hispana

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encefalitis autoinmune

encefalitis autoinmune información, tratamiento, diagnóstico, síntomas, videos, anti-NMDAr

Amobi Okoye’s journey anything but typical

 Former Texans defensive tackle Amobi Okoye contracted a rare form of Autoimmune Encephalitis that nearly claimed his life, and now he’s trying to make a comeback to the NFL.

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145 Days | Amobi Okoye

“What are you talking about? It’s like … March.” We’re going back and forth – kind of arguing, but not really. I have a headache and I don’t know why. I also don’t know why this nurse is checking me out in the first place.

What does your 2017 look like in a Word Cloud? Click on the link and your most frequently used words on FaceBook instantly create a word cloud that speaks of what was most important to you this past year.

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My most used words on Facebook. What are yours?

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Highlighted Article of Particular Note this month:
Decreased occipital lobe metabolism by FDG-PET/CT
An anti–NMDA receptor encephalitis biomarker


To compare brain metabolism patterns on fluorodeoxyglucose (FDG)-PET/CT in anti–NMDA receptor and other definite autoimmune encephalitis (AE) and to assess how these patterns differ between anti–NMDA receptor neurologic disability groups. 


Marked medial occipital lobe hypometabolism by dedicated brain FDG-PET/CT may serve as an early biomarker for discriminating anti–NMDA receptor encephalitis from other AE. Resolution of lateral and medial occipital hypometabolism may correlate with improved neurologic status in anti–NMDA receptor encephalitis.

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Decreased occipital lobe metabolism by FDG-PET/CT: An anti-NMDA receptor encephalitis biomarker

Good news and big strides forward from these 2 pieces of work!

The proposed clinical diagnostic criteria for anti-NMDAr encephalitis by Dr. Graus have high sensitivity and specificity in pediatric patients.

The median time of fulfilling the criteria in patients with anti-NMDAR was 2 weeks from first symptom onset. Pediatric Neurologists are being directed to this in hospitals around the globe.

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High sensitivity and specificity in proposed clinical diagnostic criteria for anti‐N‐methyl‐D‐aspartate receptor encephalitis

The Mayo Clinic has developed a test, the first of its kind in the United States,
that allows doctors to distinguish other inflammatory demyelinating diseases from multiple sclerosis in the early stages of a disorder. In addition to MS, the disorders include optic neuritis, neuromyelitis optica, (NMO), acute disseminated encephalomyelitis, and acute transverse myelitis.

The test looks for an antibody against a protein known as myelin oligodendrocyte glycoprotein in the blood. Loss of the protein is associated with inflammatory demyelinating diseases.

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MS Test Distinguishes Other Demyelinating Diseases from MS

IAES is a 501(c)3 non-profit organization run by volunteers.

Your donations allow us to continue to give direct support to people in the AE Community resulting in receiving fast-accurate diagnosis and treatment which saves life. 

Please consider a charitable tax deductible Donation

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.




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