Don’t Be Left Behind. Keep Up With THE HERD!
Selected Highlighted News in the field of Autoimmune
Encephalitis December 2020 1st edition
In this Issue~
- *Announcements: Shop & Support IAES, The Neuroscience of Stress Lecture Dec 3rd, Sales at the AE Warrior Store
- *Children’s Corner: Largest COVID-19 contact tracing study to date finds children key to spread, evidence of super spreaders, Holiday Word Scramble Puzzles
*Most Popular Image Downloads: Clinical Suspicion of AE, Stop. Someone in this house has a Weak Immune System poster
- *COVID-19’s Impact on the AE Community: Supplementation with vitamin D in the COVID-19 pandemic?, What the Data Say about Wearing Face Masks
- *Most Popular Visual: Fatigue after Brain Injury, CSF-Serum models of autoantibody production
- *Featured AE Articles: Diagnostic Challenge of Seronegative AE with Super-Refractory Status Epilepticus, Sleep disorders in anti-NMDAR encephalitis
- *Clinician’s Corner: Management and prognostic markers in patients with autoimmune encephalitis requiring ICU treatment
- *COVID-19 Clinician’s Corner: Tocilizumab is recommended for the treatment of severe COVID-19
- *Open Access: Olanzapine and Lorazepam Used in the Symptomatic Management of Excited Catatonia Secondary to Anti-N-Methyl-D-Aspartate Receptor Encephalitis
Announcements
Ways to Shop & Support IAES
Have you wanted to support IAES, autoimmune encephalitis awareness, and the AE Warrior that you love? Have you found our services helpful? Do you want to make sure patients are identified early and that they and their loved ones receive the best help possible during this difficult journey? Here is an easy and affordable way to donate without feeling a thing when shopping with your Paypal account. Each time you check out you will be reminded that you can give $1 to IAES. |
While shopping online via Amazon Smiles, you can support your favorite non-profit and get that great deal online!
Simply select IAES as the non-profit you want to support, and Amazon will donate 5% of our purchases to the International Autoimmune Encephalitis Society.
Here is a handy tool that will automatically redirect you to smile.amazon.com when you are shopping so you never have to worry about forgetting to type it in to ensure benefits go to IAES.
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Under Pressure: The Neuroscience of Stress- December 3rd
Are you interested in learning more about the amazing neuroscience research being done in the UPENN community? Tune in on December 3rd at 6PM EST to hear from leading neuroscience experts about their research into the neuroscience of stress. |
Raise Awareness by Shopping at the AE Warrior Store
AE Warrior-what’s your superpower-mask
shopping bag
back of long sleeve t-shirt
hoodie
Holiday Sales are on and frequently change as to what merchandise is discounted. During this shopping season, we encourage you to visit our AE Warrior store often in order to get that great deal. You will find a variety of products designed to raise AE awareness and support research. The proceeds from your purchase will immediately support autoimmune encephalitis patients, caregivers, and families who are walking this difficult journey. Visit #AE Warrior Gifts on the IAES website for some great stocking stuffer ideas, many offerings there are free. Don’t forget to get a deck of AE Trivia Cards for your AE Warrior, family members, or your Neurologist. |
Children’s Corner
Largest COVID-19 contact tracing study to date finds children key to spread, evidence of superspreaders
A study of more than a half-million people in India who were exposed to the novel coronavirus SARS-CoV-2 suggests that the virus’s continued spread is driven by only a small percentage of those who become infected. Furthermore, children and young adults were found to be potentially much more important to transmitting the virus — especially within households — than previous studies have identified. “Our study presents the largest empirical demonstration of superspreading that we are aware of in any infectious disease,” Laxminarayan said. “Superspreading events are the rule rather than the exception when one is looking at the spread of COVID-19, both in India and likely in all affected places.” The findings provide extensive insight into the spread and deadliness of COVID-19 in countries such as India. The researchers also reported, however, the first large-scale evidence that the implementation of a countrywide shutdown in India led to substantial reductions in coronavirus transmission. |
Christmas Word Scramble puzzles for Cognitive Exercise and Rehabilitation
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Most Popular Download
Clinical Suspicion of Autoimmune Encephalitis
Poster: Stop Someone in This House Has a Weak Immune System
COVID-19’s impact on the AE Community
Supplementation with vitamin D in the COVID-19 pandemic?
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WHAT THE DATA SAY ABOUT WEARING FACE MASKS
To be clear, the science supports using masks, with recent studies suggesting that they could save lives in different ways: research shows that they cut down the chances of both transmitting and catching the coronavirus, and some studies hint that masks might reduce the severity of infection if people do contract the disease. Back to ballistics, the masks debate is closely linked to another divisive question: how does the virus travel through the air and spread infection? The moment a person breathes or talks, sneezes or coughs, a fine spray of liquid particles takes flight. Some are large — visible, even — and referred to as droplets; others are microscopic, and categorized as aerosols. Viruses including SARS-CoV-2 hitch rides on these particles; their size dictates their behavior. Droplets can shoot through the air and land on a nearby person’s eyes, nose, or mouth to cause infection. But gravity quickly pulls them down. Aerosols, by contrast, can float in the air for minutes to hours, spreading through an unventilated room like cigarette smoke. What does this imply for the ability of masks to impede COVID-19 transmission? The virus itself is only about 0.1 μm in diameter. But because viruses don’t leave the body on their own, a mask doesn’t need to block particles that small to be effective. More relevant are the pathogen-transporting droplets and aerosols, which range from about 0.2 μm to hundreds of micrometres across. (An average human hair has a diameter of about 80 μm.) The majority are 1–10 μm in diameter and can linger in the air for a long time. |
Most Popular Visual~
Fatigue After Brain injury
Featured AE Articles~
Diagnostic Challenge of Seronegative AE with Super-Refractory Status Epilepticus
|
Sleep disorders in anti-NMDAR encephalitis
|
Clinician’s Corner
Management and prognostic markers in patients with autoimmune encephalitis requiring ICU treatment
|
COVID-19 Clinician’s Corner
Tocilizumab is recommended for the treatment of severe COVID-19
|
Olanzapine and Lorazepam Used in the Symptomatic Management of Excited Catatonia Secondary to Anti-N-Methyl-D-Aspartate Receptor Encephalitis
|
AE Trivia Playing Cards
The perfect companion for patients, Caregivers & Therapist
We appreciate the National Organization of Rare Diseases’ (NORD) enthusiastic support in recommending this groundbreaking product.
During the COVID-19 pandemic, it is vitally important that you #StayHome and practice #SocialDistancing. Grocery shopping, as well as all shopping, should be done online.
When you shop Amazon Smiles and select IAES as the non-profit you want to support, Amazon will donate 5% of our purchases to the International Autoimmune Encephalitis Society.
The need for our services has increased exponentially. This simple act of kindness, will support the work we do and advance our ability to service the community.
Are YOU an IAES angel? Do you love someone with AE? Do you want to raise AE awareness to not just support AE Warriors but lead researchers to finding a cure? The IAES Angel is someone who lifted IAES upward by ensuring that comfort, guidance and improved health is brought into an AE patient’s life.
IAES Angels are motivated by their Spirit of giving. They are Champions in raising AE awareness. Your devotion to supporting our mission and improving the lives of those who suffer from AE is felt mightily and immediately put to use.
When you become an #IAESANGEL, International Autoimmune Encephalitis Society will send you this badge and profile frame to place on your Facebook page or Website. As badges ‘take flight’ heralding IAES has been ‘touched by an angel’, others will take notice and they too may find their wings. Together, we will create a future where AE is eradicated from this world and only referenced in medical history books.
International Autoimmune Encephalitis Society is proud to be a platinum level participant on the Guide Star exchange, demonstrating or commitment to financial transparency. IAES is a charitable non-profit 501 (c)(3) organization. Tax ID#81-3752344
Donations raised are greatly appreciated and directly support research, patients, caregivers, and families through their journey so the best outcomes can be reached. Your contribution to our mission will help save a life and improve the quality of lives for others. Be a part of the solution by supporting IAES.
Driven by the knowledge that “Education is Power”, Int’l AE Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones on Face Book, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.
