Don’t Be Left Behind. Keep Up With THE HERD!
Selected Highlighted News in the field of Autoimmune
Encephalitis February 2020 1st edition
- Announcements: February Autoimmune Encephalitis Awareness Month, Virtual Art Show, Follow IAES on Instagram, AE Warrior Gifts
- Most Popular Article of the Month: Pathological tearfulness after limbic encephalitis A novel disorder and its neural basis
- Most Popular Visual of the Month: Autoimmune Encephalitis Infographic
- New Website Page: AE Warrior Gifts
- Most Popular Video: AE Warriors Stepping Forward
- Clinician’s Corner: Clinical approach to the diagnosis of autoimmune encephalitis in the pediatric patient
- Open Access: Pregnancy outcomes in anti-NMDA receptor encephalitis
Autoimmune Encephalitis Awareness Month is underway. Our 4th annual awareness video has reached over 3,000 people in the AE community in the first 3 days.
In a few weeks will be announcing the first product in the world developed for people with AE and their loved ones. Watch This Space!
Submissions have been extended for the Virtual Art Show. This is our 2nd annual Virtual Art Show. Anyone can submit art and your art can take any form. Photography, music, poems, a meme you create, paint, drawings, clay…the sky is the limit to how you want to express yourself and share with others about how AE has affected your life or simply share your personal expressions as someone touched by AE.
You can submit your art via our website or e-mail it to us. There is no limit to how many items you submit. The more the merrier.
Tell your friends and family to get creative. Let’s all shine a light on AE.
You can now follow us on Instagram at intl_ae_society for educational and entertaining visual information.
Check out special gifts you can give the AE Warrior, Mom, RN, Doctor, Child and Caregivers in your life. Take the opportunity to share your love and support in a way that is guaranteed to bring them a smile.
Most Popular Article of the Month~
Pathologic tearfulness after limbic encephalitis A novel disorder and its neural basis
Do you have limbic encephalitis?
Pathologic tearfulness was reported by 50% of the patients, while no patient-reported pathologic laughing.
Pathologic tearfulness is common following aLE, is not a manifestation of other neuropsychiatric features, and reflects abnormalities in networks of emotion regulation beyond the acute hippocampal focus. The condition, which may also be present in other neurologic disorders, provides novel insights into the neural basis of affective control and its dysfunction in disease.
Most Popular Visual of the Month~
This special ‘info meme’ has been specifically designed for AE Awareness month. IAES encourages you to copy and share it on your social media platforms.
Please visit our AE Memes website page. You will find memes on the most common topics around AE. IAES has developed ‘info memes’ using color, images and short pieces of information to support the AE Warrior’s deficits and provide a user-friendly way to learn about AE.
Announcing New Website Page: AE Warrior Gifts
These IAES Royal Registry Certificates are only available during the month of February
The Royal IAES Registry designates The AE Warrior™ and AE Sentinel with Royal Title. In recognition of their heroism under fire. The Royal IAES Registry is the highest honor to be bestowed upon those engaged in the mighty autoimmune encephalitis battle. Without warning and within an instant, these unprepared citizens were thrust unto a perilous fire raging battlefield. To fight demanded that they dig deep into the depths of their soul for the inner-strength they had to summon to save their life or the life of the one they loved. This act is so rare IAES sanctifies and affirms by sealed decry the bestowing of Royal Title into the IAES Registry on the second month of each year.
Most Popular Video of the Month
AE Warriors Stepping Forward
AE Warriors Stepping Forward is dedicated to increasing awareness of autoimmune encephalitis by creating a ripple effect of positivity and empowerment for patients and their loved ones. IAES has purchased the rights to the song: Stepping Forward by Brown House Media. Autoimmune Encephalitis is a group of inflammatory brain diseases that are characterized by prominent neuropsychiatric symptoms. These patients often present with first-time out-of-the-blue psychosis and are often misdiagnosed with Bi-polar disorder or schizophrenia. Common clinical features include a change in behavior, psychosis, seizures, memory and cognitive deficits, abnormal movements, dysautonomia, and a decreased level of consciousness.
Psychiatrists and Emergency Room Physicians are often the first medical professionals who see these patients. It is vital that Clinicians consider the possibility of an autoantibody-related etiology and become familiar with the red flags suggestive of synaptic autoimmunity as the underlying cause in all cases of first-onset, out-of-the-blue psychosis. A high level of suspicion is necessary as autoimmune encephalitis is treatable with immunotherapy.
Clinician’s Corner
Pregnancy outcomes in anti-NMDA receptor encephalitis
Conclusions Patients who develop anti-NMDAR encephalitis during pregnancy or become pregnant during recovery often have obstetrical complications, but most of the newborns are healthy and appear to have normal development.
Clinical approach to the diagnosis of autoimmune encephalitis in the pediatric patient
This Key Paper written by top experts in the field of autoimmune neurology is a must-read for parents and clinicians. Autoimmune encephalitis (AE) is an important and treatable cause of acute encephalitis. Diagnosis of AE in a developing child is challenging because of overlap in clinical presentations with other diseases and the complexity of normal behavior changes. Existing diagnostic criteria for adult AE require modification to be applied to children, who differ from adults in their clinical presentations, paraclinical findings, autoantibody profiles, treatment response, and long-term outcomes.
Proposed pediatric AE criteria are intended to address differences in clinical presentations, paraclinical findings, and autoantibody profiles between children and adults. The accompanying algorithm aims to guide diagnostic workup and facilitate earlier initiation of therapy.
Are YOU an IAES angel? Do you love someone with AE? Do you want to raise AE awareness to not just support AE Warriors but lead researchers to finding a cure? The IAES Angel is someone who lifted IAES upward by ensuring that comfort, guidance and improved health is brought into an AE patient’s life.
IAES Angels are motivated by their Spirit of giving. They are Champions in raising AE awareness. Your devotion to supporting our mission and improving the lives of those who suffer from AE is felt mightily and immediately put to use.
When you become an #IAESANGEL, International Autoimmune Encephalitis Society will send you this badge and profile frame to place on your Facebook page or Website. As badges ‘take flight’ heralding IAES has been ‘touched by an angel’, others will take notice and they too may find their wings. Together, we will create a future where AE is eradicated from this world and only referenced in medical history books.
Your donations are greatly appreciated. Every dollar raised allows us to raise awareness and personally help Patients, Families and Caregivers through their Journey with AE so that best outcomes may be reached. Your contribution to our mission will help save a life and improve the quality of lives for others. Be a part of the solution by supporting IAES.
International Autoimmune Encephalitis Society (IAES) is a Family/Patient centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey.
Driven by the knowledge that “Education is Power”, Int’l AE Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones on Face Book, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.
