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Selected Highlighted News in the field of Autoimmune
Encephalitis February 2020 2nd edition
In this Issue~
- Announcements: Autoimmune Encephalitis Trivia Cards on Sale, March-Brain Injury Awareness month, Free Emergency Medical Alert I.D. card for the AE patient
- Most Popular Handout of the Month: A Letter from your Brain
- Most Popular Visual of the Month: Precautions for AE patients & COVID
- Most Popular Video: Dr. Aaron Boster addresses COVID-19 for MS patients (which also applies to AE patients)
- Clinician’s Corner: Beijing hospital confirms nervous system infections (encephalitis) by novel coronavirus
- Open Access: Persistence of coronaviruses on inanimate surfaces and its inactivation with biocidal agents
Autoimmune Encephalitis Trivia playing cards is the first product in the world designed to educate patients, medical professionals, caregivers and friends about autoimmune encephalitis and act as an important patient rehabilitation tool all in one.
Created by Tabitha Orth, IAES President and in collaboration with Josep Dalmau, M.D., Ph.D. (The World’s leading expert on AE), AE Trivia cards answers the most common questions about AE. By supporting the cognitive deficits the AE patient has, AE Trivia breaks down information in an entertaining way so learning can occur. Color coding is used to support patients whose baseline starts with color and number matching and supports children’s games. As re-learning/re-training the brain advances other suggested games can be used. AE Trivia advances rehabilitation of brain functions such as long- and short-term memory, attention level, reading and reasoning skills, and cognition. Set includes 52 playing cards and 2 Jokers and a booklet on how to use the cards.
All proceeds will directly support Dr. Dalmau’s research group. This vital and groundbreaking tool is a must-have for all patients, caregivers, teachers, therapists, and loved ones. On Sale Now at the introductory low price of $15 per deck.
AE patients have acquired brain injury from their disease. Many #AEwarriors will improve with a long rehabilitation effort. Most of AE patients have lasting deficits from brain injury to some degree.
Raise #AEawareness during March using these hashtags #ABI #AutoimmuneEncephalitis
Our Brain Injury handout is also helpful for family, friends, teachers and employers.
You can now follow us on Instagram at intl_ae_society for educational and entertaining visual information.
Free Downloads for AE Patients and Loved ones. Visit: AE Warriors Gifts
IAES has created this medical alert card specifically for patients with a diagnosis of autoimmune encephalitis. A free gift to our AE Warriors™.
Download and print this important AE Medical Alert ID Card. While visiting this page of our website, check out special gifts you can give the AE Warrior, Mom, RN, Doctor, Child and Caregivers in your life. Take the opportunity to share your love and support in a way that is guaranteed to bring them a smile.
Most Popular Handout of the Month~
A Letter From Your Brain
March is Brain Injury Awareness Month. Those battling autoimmune encephalitis or in recovery from autoimmune encephalitis suffer acquired brain injury.
This letter from your brain reminds us all of the importance of getting plenty of sleep, napping to restore your brain and watching for signs that you are asking too much of your brain and need to slow down.
Most Popular Visual of the Month
IAES takes pride in keeping our community up-to-date with the latest news in the field of autoimmune neurology and topics that directly impact our lives. Our motto, “Education is Power” continues to ring true as education does help to steer the best outcomes. Our motto is particularly appropriate in regard to the COVID-19 Virus.
Information about the COVID-19 continues to dominate world news and likely will for some time to come. We have prepared a flyer of the preventive measures you can take as recommended by the guidance from the Centers for Disease Control and Prevention (CDC). You can print out and post this flyer at home, school, doctor’s offices, work, place of worship, or anywhere in your community. In addition, we have created this ‘info meme’ that can be easily and widely shared on social media platforms. International Autoimmune Encephalitis Society continues to monitor the situation with the AE community in mind.
Most Popular Video of the Month
Dr. Aaron Boster addresses COVID-19 for MS patients (which also applies to AE patients).
It is an outstanding overview of what the AE patient needs to be aware of with COVID-19. Most of us have our immune systems suppressed due to the treatment for AE, which is also true for MS patients and puts us at a higher risk of infection.
Take the time to watch this video to be well informed on best practices during this pandemic.
Beijing hospital confirms nervous system infections by novel coronavirus
Chinese Doctors conducted gene sequencing on samples of Cerebral Spinal Fluid (CSF) & proved for the 1st time that the novel coronavirus can cause damage to patients’ Central Nervous System (CNS).
Diagnosing the COVID-19 patient with viral encephalitis!
Persistence of coronaviruses on inanimate surfaces and its inactivation with biocidal agents
The analysis of 22 studies reveals that human coronaviruses such as Severe Acute Respiratory Syndrome (SARS) coronavirus, Middle East Respiratory Syndrome (MERS) coronavirus or endemic human coronaviruses (HCoV) can persist on inanimate surfaces like metal, glass or plastic for up to 9 days, but can be efficiently inactivated by surface disinfection procedures with 62-71% ethanol, 0.5% hydrogen peroxide or 0.1% sodium hypochlorite within 1 minute. Other biocidal agents such as 0.05-0.2% benzalkonium chloride or 0.02% chlorhexidine digluconate are less effective. As no specific therapies are available for 2019-nCoV, early containment and prevention of further spread will be crucial to stop the ongoing outbreak and to control this novel infectious thread.
Your donations are greatly appreciated. Every dollar raised allows us to raise awareness and personally help Patients, Families and Caregivers through their Journey with AE so that best outcomes may be reached. Your contribution to our mission will help save a life and improve the quality of lives for others. Be a part of the solution by supporting IAES.
International Autoimmune Encephalitis Society (IAES) is a Family/Patient centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey.
Driven by the knowledge that “Education is Power”, Int’l AE Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones on Face Book, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.