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THE HERD May 2018 ~1st ed

image 6 1 - THE HERD May 2018 ~1st ed

MAY NEWSLETTER

Selected Highlighted News in the field of Autoimmune

Encephalitis May 2018 1st edition

In this issues: Genetic and Rare Diseases Information Center (GARD), in conjuction with the National Institute of Health (NIH) Thanks IAES for being a valuable Resource on Autoimmune Encephalitis. Learn about 

Therapeutic Advances in the treatment of Autoimmune Encephalitis. Get your free subscription to a leading magazine by the American Academy of Neurology

Treatment strategies for autoimmune encephalitis

Retrospective observations indicate that early aggressive treatment is associated with better functional outcomes and fewer relapses. Immune response to first-line immunotherapeutic agents (corticosteroids, intravenous immunoglobulin, plasma exchange, and immunoadsorption) is fair, but approximately half or more of patients are administered second-line immunotherapy (rituximab and cyclophosphamide). A small but significant proportion of patients are refractory to all first- and second-line therapies and require further treatment. Although several investigations have shown promising alternatives, the low absolute number of patients involved necessitates more evidence to establish further treatment strategies. In this review, the agents used for first- and second-line immunotherapy are discussed and recent attempts at finding new treatment options are introduced.

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Genetic and Rare Diseases Information Center (GARD) Thanks IAES for being a valuable Resource  on Autoimmune Encephalitis

(including, limbic encephalitis, paraneoplastic neurologic disorder, and Hashimoto’s disease). 

In their letter, GARD stated: “You gave a number of recommendations including new links, content, and highlighted some great resources offered by your Society. Thanks so much. In response, we have reviewed our information, and the medical literature, and have made changes to our web page. It now reflects your suggested edits. You can view these updates at the following links: “

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Brain&Life contains a wide array of helpful articles for Families, Patients and Caregivers. You can also keep abreast of the latest news in Neurology.

Neurología accesible en español Brain & Life en español es la primera publicación dirigida a hispanohablantes con guías e información accesible sobre el cerebro y el sistema nervioso.

International Autoimmune Encephalitis Society (IAES) is a Family/Patient centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey. 

 

Driven by the knowledge that “Education is Power”, Int’l AE Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones on Face Book, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.

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