MAY NEWSLETTER
Selected Highlighted News in the field of Autoimmune
Encephalitis May 2018 2nd edition
In this issue: A podcast from Dr. Irani of Oxford on LGI1, CASPR2 and why not to test for VGKC. Open Access papers of interest from Dr. Dalmau’s Neuroimmunology & Neuroinflammation magazine. How an infectious encephalitis survivor is working with Encephalitis Global to raise funds to produce a film about his story.
Podcast- Dr. Irani of Oxford
and his group, teamed with Dr. Pittock of Mayo Clinic Rochester and the AE experts in their group in this study. Why labs should stop VGKC testing and rather test for LGI1 and Caspr2 for autoimmune encephalitis. Yet why VGKC positive may be of interest. From his recent paper: LGI1, CASPR2 and related antibodies: a molecular evolution of the phenotypes.
Two Articles of interest on anti-NMDAr encephalitis
Interesting and easy to read case study of an anti-NMDAr encephalitis, A 17-year-old female presented with two days of acute psychosis, which progressed to catatonia and unresponsiveness
May issue of Neurology: Neuroimmunology & Neuroinflammation is here!
Editor’s Corner
Josep Dalmau -open access-full text
Looks can be deceiving A B-cell–mediated encephalopathy with normal MRI?
In his last year of college Jacob Savoie fell victim to infectious encephalitis. Encephalitis Global, an organization that supports all three types of encephalitis, infectious, viral and autoimmune encephalitis, has entered into an agreement with Mr. Savoie to receive $0.05 cents for every dollar of contributions made toward the production of a movie which tells Jacob’s story of becoming ill with infectious encephalitis titled:
International Autoimmune Encephalitis Society partners in advocacy and supports the other nonprofits in the greater autoimmune encephalitis and encephalitis community in their efforts to raise awareness and research into all three types of encephalitis. We look upon this as a community effort of support for people who have been touched by any type of encephalitis. We encourage you to view the tailor for the movie and increase your own awareness of a type of encephalitis other than autoimmune encephalitis.
International Autoimmune Encephalitis Society (IAES) is a Family/Patient centered organization that assists members from getting a diagnosis through to recovery and the many challenges experienced in their journey.
Driven by the knowledge that “Education is Power”, Int’l AE Society manages an educational support group for patients diagnosed with Autoimmune Encephalitis and their loved ones on Face Book, empowering them to be strong self-advocates and advocates that will lead them to best outcomes and recovery. We are the premiere organization leading in these vital roles.
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