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Selected Highlighted News in the field of Autoimmune

Encephalitis September 2018 1st edition

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Take part in the #StandUpforAE Challenge and help spread awareness about AE across the globe.  Researchers at Mayo Clinic, Rochester, MN have identified another antibody in AE which causes autoimmune ataxia.

Take the #StandupforAE challenge! Gab your phone and make a video stating you are standing up for Autoimmune Encephalitis and why. Post it on social media and send a copy into IAES.  Challenge others to do the same so we can raise awareness of these treatable disorders. Have FUN. Use your imagination. #StandupforAE #IAES #antiNMDAr #autoimmuneencephalitis #autoimmune #encephalitis #AEwarrior 

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image 66 - THE HERD September 2018~1st ed

Mayo Clinic discovers a new antibody in Autoimmune Encephalitis

Septin-5, represents a biomarker for a potentially fatal but treatable autoimmune ataxia. This is a form of autoimmune cerebellar ataxia in which antibodies target septin-5.  All 4 patients had subacute onset of cerebellar ataxia with prominent eye movement symptoms (oscillopsia or vertigo). None had cancer detected. Improvements occurred after immunotherapies (2) or spontaneously (1). One patient died.  (Below we have included more information about ataxia as it is a symptom any AE patients suffer with. 

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Cerebellar Ataxia

Ataxia describes a lack of muscle control or coordination of voluntary movements, such as walking or picking up objects. A sign of an underlying condition, ataxia can affect various movements, creating difficulties with speech, eye movement and swallowing.

Persistent ataxia usually results from damage to the part of your brain that controls muscle coordination (cerebellum).

Here at IAES we like to use a variety of mediums to help people learn and understand. This song: Without You Cerebellum, is a great way to understand what the cerebellum does. Rock out and learn 🙂 

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Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.




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