September NEWSLETTER
Selected Highlighted News in the field of Autoimmune
Encephalitis September 2018 2nd edition
IAES begins a support group for Teens. AE Researchers win The 2018 Zülch Prize. Printable handout for Teachers, Employers and Friends that explains AE in easy language. Take part in the #StandUpforAE Challenge and help spread awareness about AE across the globe.
IAES Begins a Support Group for Teen Aged AE Warriors
Teenagers reached out to IAES and requested a place where they could come together for support and unity. We are honored to meet their needs. The main administrator of the group is teen, Patrick Morrison. This is a safe and confidential place where teens with a diagnosis of Autoimmune Encephalitis can express what they are going through with their disease. The group discusses the challenges they have specific to their age group and the journey they are on in battling AE while going to school and trying to live as normal a life as possible. A condition of membership is that at least one parent be a member of the educational support group IAES provides in order to provide full family support
The 2018 Zülch Prize: Autoimmunity in Neurological Diseases
Angela Vincent and Josep Dalmau (pictured) and Jerome Posner have uncovered new diseases and have improved outcomes for neurological deficits
Patients with Autoimmune Encephalitis owe our lives to these three researchers.
Join IAES in congratulating Dr. Jerome Posner, Dr. Angela Vincent and Dr. Josep Dalmau for their research into how autoimmunity produces these neurological disorders that include paraneoplastic and non-paraneoplastic neurologic syndromes and the antibody-mediated autoimmune encephalitis syndromes.
Their work has been pivotal in ensuring that many of these disorders are now recognized and patients promptly treated offering the best opportunity for neurologic improvement.
In recognition of their outstanding achievements, the researchers have been awarded the Gertrud Reemtsma Foundation’s K. J. Zülch Prize worth 50,000 euro. The award ceremony took place in Cologne, Germany on September 21, 2018.
Have you posted a #StandupforAE video yet? Help raise worldwide awareness of this treatable disease. Grab you phone a make a video saying “I Am Standing Up for AE” and how it has affected you. Then post it on all your social media! Watch this video and learn more:)
