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Selected Highlighted News in the field of Autoimmune

Encephalitis September 2018 2nd edition

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IAES begins a support group for Teens. AE Researchers win The 2018 Zülch Prize.  Printable handout for Teachers, Employers and Friends that explains AE in easy language. Take part in the #StandUpforAE Challenge and help spread awareness about AE across the globe.

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IAES Begins a Support Group for Teen Aged AE Warriors


Teenagers reached out to IAES and requested a place where they could come together for support and unity.  We are honored to meet their needs. The main administrator of the group is teen, Patrick Morrison.  This is a safe and confidential place where teens with a diagnosis of Autoimmune Encephalitis can express what they are going through with their disease.  The group discusses the challenges they have specific to their age group and the journey they are on in battling AE while going to school and trying to live as normal a life as possible.  A condition of membership is that at least one parent be a member of the educational support group IAES provides in order to provide full family support

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The 2018 Zülch Prize: Autoimmunity in Neurological Diseases

Angela Vincent and Josep Dalmau (pictured) and Jerome Posner have uncovered new diseases and have improved outcomes for neurological deficits

Patients with Autoimmune Encephalitis owe our lives to these three researchers.

Join IAES in congratulating Dr. Jerome Posner, Dr. Angela Vincent and Dr. Josep Dalmau for their research into how autoimmunity produces these neurological disorders that include paraneoplastic and non-paraneoplastic neurologic syndromes and the antibody-mediated autoimmune encephalitis syndromes.

Their work has been pivotal in ensuring that many of these disorders are now recognized and patients promptly treated offering the best opportunity for neurologic improvement.

In recognition of their outstanding achievements, the researchers have been awarded the Gertrud Reemtsma Foundation’s K. J. Zülch Prize worth 50,000 euro. The award ceremony took place in Cologne, Germany on September 21, 2018.

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Have you posted a #StandupforAE video yet? Help raise worldwide awareness of this treatable disease. Grab you phone a make a video saying “I Am Standing Up for AE” and how it has affected you.  Then post it on all your social media!  Watch this video and learn more:) 

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Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.

International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

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