Apps and Tools for AE Warriors

brain with an idea

Medical I.D.

Emergency Medical Alert ID Card for AE Warriors™

IAES has created this medical alert card specifically for patients with a diagnosis of autoimmune encephalitis. A free gift to our AE Warriors™.

Download and print this important AE Medical Alert ID Card

Freedom Guardian

Wearable Medical Alert watch. Freedom Guardian is a revolutionary, all-encompassing approach to medical alert systems, incorporating features that will provide day-to-day support for users and their loved ones.

Free Printable Medical Identification Card

You can download a free medical ID card and print it out as a PDF document. Or you can type in your information using the provided free ID card program. This medical identification card can be used in your wallet or laminated and attached to clothing or lanyards. This free medical ID is no substitute for a bracelet. Wallet cards should be used with a medical id bracelet. Personnel are trained to look for an ID bracelet and or ID necklace. Wallet cards are used as a back up.

Seatbelt Medical Alert

When Emergency Service Providers arrive on the scene of a medical emergency to render aid, one of the first steps taken involves removing the patient’s seat belt. The Rescue Facts Emergency Information Pack wraps around your seatbelt, your spouse, and even your infant. It provides an instant method of communicating crucial information to EMS. The Rescue Facts information wrap is specifically designed to capture the attention of emergency personnel while protecting your privacy.

ROAD iD

ID that looks great, lasts forever, and just might
save your life.

Medical Alert Wristband

100% silicone, non-allergenic medical alert wristbands. These wristbands have a colored, sunken area to be engraved with up to 80 characters of medical alert or emergency contact information. Priced at only $14.95 each including personalization, these are the lowest priced Medical ID Bracelets on the market today! They are extremely strong and will last for years to come. Unlike our Strong ID emergency wristbands which are not designed for daily wear, our new Medical Alert wristbands can be worn 24/7

Medical ID and Health Record on a Thumb drive

If you can’t speak for yourself in the event of an accident or debilitating medical episode, your MyIHR enabled medical ID will. This product allows you to create an Interactive Health Record that will provide emergency personnel with your Name, Address, Emergency Contacts, Health Insurance, Conditions,Medications, Allergies, and more. In order to provide you the best possible care, your Interactive Health Record is available to Emergency Personnel 24 hours a day, 365 days a year, via the website AND telephone.

Medications

Prescription Discounts

Savings average 54% and, in some cases, can be 80% or more at over 62,000 pharmacies nationwide.

Medisafe Medication Management app

Never forget to take your meds and pills again with the MUST HAVE pill reminder ranked #1 by pharmacists and physicians in independent tests.

Apple

 

GoodRx APP

GoodRx is the #1 free medical app for iOS and Android. Save up to 80% on your prescriptions with this free GoodRx app

Pill Reminder & Medication Tracker - Medisafe app

android – Get the free “MUST HAVE” award-winning pill reminder and medication tracker ranked #1 by pharmacists, physicians and patients. Join the millions of people using Medisafe who are taking control of their medication management with our free app – stay on track and never miss another med.

PillSuite Pill Management System

PillSuite replaces bulky boxes, cumbersome bottles, and traditional plastic pill organizers. and easily organizes daily medications. Dosage instructions can be written on each individual packets. Organize and seal doses yourself, quickly and easily. Ready for travel, vacation, or just a walk, your pills are now mobile to match your lifestyle!

PillPack

A full-service pharmacy that sorts your medication by the dose and delivers to your door.Your medication, packaged by the dose and shipped directly to you every month.

Free Prescription Discount Card

Get your Free Prescription Discount Card and automatically SAVE on over 50,000 drugs nationwide.

Symptom Apps

Symple Journal - Android

The goal of this app is to make journal entries of health symptoms as quickly and efficiently as possible.

This app does 4 things: simple daily entry of symptoms; graphs of the past 4 weeks of each symptom to view or show; sharing of graphs and data through Dropbox and email; showing correlations and predictions among symptoms. It does nothin else, is as simple as possible.

Define all your own symptoms to track, up to 180 symptoms (I hope not!). Define several (up to 6) segments of the day to track separately.

Symple-Symptom Tracker APP for IPhone

Tracking your AE symptoms is EASY with this APP. You input your own symptoms and quickly note how you are doing when the app alerts you a few times a day.

Once it is set up,  it’s a matter of checking a box in regard to that symptom for time of day and severity.  This allows you to accurately report to your doctor and even e-mail them a chart of how you are doing with each symptom. You can track if treatment is working and feel in control of being able to identify if symptoms are relapsing. Includes a place for medications and notes.

Calendar apps

WeekCal~Most Powerful Calendar APP

Support your memory loss issues with WeekCal. WeekCal breaks through the limitations of the standard calendar for iPhone, Apple Watch & iPad. A truly multifunctional and customizable calendar for your personal needs.

Cozi Family Organizer

This is a family organisation app that includes a shared calendar, shopping lists, to do lists and a family journal. It allows a person with brain injury to stay up-to-date and keep track of various family events and duties.
Price: Free
From: GooglePlay and Apple App Store

Communication

Marco Polo APP

This is a mobile phone app for both iPhone and Android devices. Unlike other forms of contact, Marco Polo allows you to take turns recording short videos. Click on the icon of the person you want to talk to, and then hold down the Start button to begin recording your message to them. Hit Stop when you are done. The person will respond in turn, and you can reply to their message when you are ready.

Supports delayed processing and overstimulation (flooding) people with brain injury experience.

SmallTalk Aphasia Female

SmallTalk Aphasia Female provides a library of pictures and videos that you can tap to speak in a female voice. It comes with dozens of common words and phrases you can use in everyday situations like meeting someone for the first time, telephoning someone, ordering at a restaurant, communicating with healthcare providers, and much more.

It also contains a series of videos that show the tongue and lip movements necessary to say keywords and phrases. You can easily rearrange the order of the icons or remove others to make it simpler to focus on your most important messages. Then, reset the app to return to the original settings.

Speak4Me APP

App recommendation for iPhone and IPad.
This is a free app that can support patients when our eyesight is blurry (common with AE) or when we are too brain fatigued to read. A handy app that can save us from over taxing our brain and still accomplish our reading needs/desires/pleasures. The app speaks the text of your reading material clearly and the speed and tone can be adjusted, a wonderful solution to supporting deficits caused by AE. Simply import the reading material or copy and paste directly.

SmallTalk Aphasia Male - Aphasia Communication App

SmallTalk Aphasia Male provides a library of pictures you can tap that speak in a male voice. It comes with dozens of common words and phrases you can use in everyday situations like meeting someone for the first time, telephoning someone, ordering at a restaurant, communicating with healthcare providers, and much more.

It also contains a series of videos that show the tongue and lip movements necessary to say keywords and phrases. You can easily rearrange the order of the icons or remove others to make it simpler to focus on your most important messages. Then, reset the app to return to the original settings.

CaringBridge

Your personal CaringBridge website gives you one centralized, private place to share health updates and request help.

Seizure Apps

FDA Clears First Smart Watch to Detect Seizures, Manage Epilepsy

The US Food and Drug Administration (FDA) has cleared for marketing the Embrace smart watch (Empatica Inc) for seizure tracking and epilepsy management.

Learn the Do’s and Don’ts of what you can do to keep that person safe until the seizure stops by itself.

Seizure Tracker APP

This has been recommended by Neurologists who have treated AE patients. Specific focus is for seizures. You can track seizures and other symptoms in a timeline (graph) with medications and lab work. It might be good option for those predominantly dealing with seizures as a main symptom or residual issue from AE.

Smart Monitor

Wearable technology for people prone to seizures

SmartWatch: An Innovative Monitoring, Detection, and Reporting Solution for Seizures

Wristwatch that continuously monitors the user and instantly alerts family members and caregivers upon the onset of abnormal movement patterns similar to those caused by generalized tonic-clonic (GTC) seizures. When the SmartWatch detects repetitive shaking motion, it automatically sends the user’s Bluetooth-connected Android phone text and phone call alerts to designated alert recipients. Within seconds, family members receive the SmartWatch alerts, which include the date, time, GPS location and duration of the event.

Cognitive, Memory, and Processing Challenges for Rehabilitation

CanPlan - IPhone IPad

CanPlan promotes independence and builds confidence by helping people with cognitive challenges complete tasks successfully. Virtually any activity can be broken into a sequence of easy-to-follow steps, illustrated by photos and reinforced with optional text and audio. Scheduling and reminder features ensure each task gets done on time.

Support workers and therapists are providing CanPlan to their clients with cognitive, memory and other challenges, while families and caregivers are using the tool with loved ones who desire more independence. For any given task, a user initially goes through the activity with a support person or family member. Together, they take photos of each step in the task, adding text or audio as needed. The task is then filed under a customizable set of categories, which could include areas such as: Food Preparation, Household Chores, Shopping, Transportation, Exercise, Workplace Tasks, and so on.

Qcard- Outsmart Forgetfulness

Qcard is a life management app to help people who need a better way to remember, manage and get things done. It was created by a man who was involved in a serious motor vehicle accident, which resulted in a brain injury that changed his life. His struggles and frustrations led him to develop Qcard as a tool for himself and it helps people living with brain injuries or anyone with memory impairments.

Brain Yoga Brain Training Game

Train your brain the relaxing way with Brain Yoga. Eleven puzzle games to train your memory, vocabulary, numeracy, spatial ability and pattern matching. It only takes a few minutes a day! No timer pressure, no high scores, just diverting puzzles. Reduce your stress and wind down before bedtime.

Elevate – Brain Training

Elevate is a brain training program designed to improve attention, speaking skills, processing speed, memory, math skills, and more. Each person is provided with his or her own personalized training program that adjusts over time to maximize results.

The more you train with Elevate, the more you’ll improve critical cognitive skills that are designed to boost productivity, earning power, and self-confidence. Users who train at least 3 times per week have reported dramatic gains and increased confidence.

Fit Brain trainer. Memo training. Logic pairs

Practicing a brain fitness with MemBrain you can improve your concentration, visualization, calculation, intelligence, short-term and visual memory.

The main principle of the game MemBrain is based on famous pairs match game, where you need to find and match two identical images. However, in MemBrain you’ll need not only to remember the position of the passing cards but also to find the main feature that unites them.

Lumosity Brain Training-Evidence-Based Brain Training

Dive into 60+ brain training games designed to challenge a variety of cognitive skills. This app has brain exercises targeting memory, attention, speed, flexibility, and problem-solving. Users can design their own personalized training, including ‘courses’ with brain-injury specific content. More advanced features are available through a paid subscription.

Brain HQ - Brain Training that works

BrainHQ is your online headquarters for working out your brain. Think of it as a personal gym, where you exercise your memory, attention, brain speed, people skills, intelligence and navigation instead of your abs, delts, and quads. Just as our bodies require care and exercise over the course of life, so do our brains—especially as we age. BrainHQ provides the exercise your brain needs to be at its sharpest.

Spaced Retrieval Therapy

This app facilitates recalling an answer over expanding intervals of time (one minute, two minutes, four minutes, etc). It helps to cement information for those with memory issues, with this method of spaced-retrieval training.

Peak – Brain Training

Peak is the fun, free brain training workout designed around you. Peak uses brain games and puzzles to challenge memory, language, and critical thinking to keep your mind active. 

Free brain games to challenge your Memory, Attention, Math, Problem Solving, Mental Agility, Language, Coordination, Creativity, and Emotion Control.

Apple Store

Android

Word Runner: Speed Reading for Kindle

One of the biggest losses we hear about from AE Warriors is mourning the loss of being able to read for pleasure.  This is a great rehabilitation tool.

Word Runner displays individual words in rapid succession. Instead of your eyes tracking across the page, they remain fixed on a single, central point. Lengthy words remain on the screen for a longer time, and natural breaks like paragraphs are marked by a pause.

Display speed is configurable from 100 to 900 words per minute. Users can slow down, stop, or back up by pressing and holding the screen.

Write the Story

This writing exercise journal is a helpful tool for AE patients. Improve memory, aphasia (forgetting words, using the wrong word but thinking the correct word), and cognitive deficits by writing stories using the list of words you need to incorporate in that story.

Relaxation Apps

Meditation Apps for Kids

Kids of all ages can reap the benefits of meditation and mindfulness using technology. Meditating even only a few minutes a day has proven to reduce stress, boost immunity, aid memory and concentration, decrease depression and anxiety, and even make you more compassionate. Don’t know where to start? Check out some of our favorite meditation apps for kids. These tools will guide kids through the process and help them relax and ground themselves.

MindShift CBT - anxiety

Is anxiety getting in the way of your life? MindShift uses scientifically proven strategies based on Cognitive Behavioural Therapy (CBT) to help you learn to relax and be mindful, develop more effective ways of thinking, and use active steps to take charge of your anxiety.

Get the tools to tackle:

• Worry

• Panic

• Perfectionism

• Social Anxiety

• Phobias

Apple

Android

Breathe2Relax

Breathe2Relax is a portable stress management tool that provides detailed information on the effects of stress on the body and instructions and practice exercises to help users learn the stress management skill called diaphragmatic breathing. Breathing exercises have been documented to decrease the body’s ‘fight-or-flight’ (stress) response, and help with mood stabilization, anger control, and anxiety management.

android

Apple

Headspace: Meditation and Sleep

Get happy. Stress less. Sleep soundly. Headspace is your guide to mindfulness for your everyday life. Learn meditation and mindfulness skills from world-class experts like Headspace co-founder Andy Puddicombe, and choose from hundreds of guided meditations on everything from managing stress and anxiety to sleep, focus, and mind-body health

android

Apple

Insight Timer - Meditation for sleep and anxiety app

The number 1 free meditation app. Guided meditations and talks led by the world’s top meditation and mindfulness experts, neuroscientists, psychologists and teachers from Stanford, Harvard, the University of Oxford and more. Music tracks from world-renowned artists. Join millions learning to meditate on Insight Timer to help calm the mind, reduce anxiety, manage stress, sleep deeply and improve happiness.

android

Apple

Assistance for Children

Meditation Apps for Kids

Kids of all ages can reap the benefits of meditation and mindfulness using technology. Meditating even only a few minutes a day has proven to reduce stress, boost immunity, aid memory and concentration, decrease depression and anxiety, and even make you more compassionate. Don’t know where to start? Check out some of our favorite meditation apps for kids. These tools will guide kids through the process and help them relax and ground themselves.

Naming Therapy

For Speech Therapy Rehabilitaiton

This is a word-finding app to help people with aphasia and children with special needs practice important naming and description skills. It allows users to add their own images. Designed by a speech-language pathologist for use in the home and clinic, this app features photos, real voices and full customisation with over 700 words included.

ChoiceWorks

The Choiceworks app helps children learn to complete daily routines, understand and control their feelings, and think about taking turns. Created with the support of leading hospitals and child development specialists, it’s designed for caregivers to support a child’s independence, positive behaviour and emotional regulation at home, in the community and at school.

Our website is not a substitute for independent professional medical advice. Nothing contained on our website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional's advice. Although THE INTERNATIONAL AUTOIMMUNE ENCEPHALITIS SOCIETY  provides a great deal of information about AUTOIMMUNE ENCEPHALITIS, all content is provided for informational purposes only. The International Autoimmune Encephalitis Society  cannot provide medical advice.


International Autoimmune Encephalitis Society is a charitable non-profit 501(c)(3) organization founded in 2016 by Tabitha Andrews Orth, Gene Desotell and Anji Hogan-Fesler. Tax ID# 81-3752344. Donations raised directly supports research, patients, families and caregivers impacted by autoimmune encephalitis and to educating healthcare communities around the world. Financial statement will be made available upon request.

CONTACT US


352-527-2470

IAES@AUTOIMMUNE-ENCEPHALITIS.ORG

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